Well don't want to get too Giddy but have just received a reply from my local paper as it looks like they have agreed to do a feature on Ovarian Cancer! did try the National's but no luck yet! Think I may anger some in the Health profession as when I question why there is very little awareness and nothing about the C125 test I get no response. My reason for doing this is that it won't change what has happened to me, nor will it alter any outcome I may face- but I have 2 daughters, 1 aged 20 and 1 aged 22 and I sure as hell will do everything in my power to give future generations the knowledge that i sure as heck didn't have. Il put below what I have sent to the paper as they have conditionally agreed to run a feature - any information, suggestions or amendments you have please could you share- cos this is not about me- this is about ALL of us and what is happening. many Thanks Janette.
I am writing to ask if there is any possibility you would cover a feature on how many women are unaware of the symptoms of Ovarian Cancer and needlessly die each year.
The current ‘Be clear On Cancer’ campaign is in part, hoping to raise awareness of Ovarian Cancer through posters and informing GP’s that if a woman feels ‘bloated’ for 3 weeks or more this could be an indicator of Ovarian cancer.
However myself and many other women who have/had Ovarian Cancer strongly believe that ALL women should be made aware that Ovarian Cancer CANNOT be detected through a smear test. The only sure way it can be found is through a C125 blood test or through an Ultrasound.
I myself was diagnosed with stage 1b Ovarian cancer in July 2013 and had a Total abdominal Hysterectomy on September 5th 2013. In the 6 weeks from diagnosis to operation my cancer had grown 2cm and progressed to 2b spreading also into my bowel and pelvis such is the aggressive nature of this type of cancer.
Early diagnosis is critical to the outcome. In the UK alone More than 7,000 (1 in 50) women are diagnosed with Ovarian Cancer each year, In Cancer research’s latest publication (Jan 2014) - In 2011, around 4,300 women in the UK died of Ovarian cancer, that’s 12 every day.
In order to raise awareness of this I recently made a poster and circulated it on my facebook page- this currently has 131 shares- this may not be many, but what does distress me most is that not one single woman was aware that Ovarian cancer cannot be detected through Smear testing. Most were unaware of the symptoms and of those who were aware ALL believed that even if they did have any of these symptoms they could not have Cancer as they had recently had a smear test taken!
As your newspaper is an important part of our community I am begging you to help me share this information to local women and raise the awareness & profile of this horrific disease and the impact it has not only on women but the families concerned. I have attached my poster currently displayed and hope to hear from valued selves.
(If i get banned from here - well tough, because i'm not letting this drop )