Making a difference for ovarian cancer patients... - My Ovacome

My Ovacome

18,248 members20,377 posts

Making a difference for ovarian cancer patients; Invitation to report launch in Parliament

TheOvacomeTeam profile image
TheOvacomeTeamPartner
6 Replies

Hello,

As many of you know, Ovacome are passionate about seeking improvements to the prevention, diagnosis and treatment of ovarian cancer. One of the many ways in which we do this is to provide advocacy opportunities for members to share their experiences with decision makers.

For the past three years we have produced local quality profiles using the latest data on the impact of ovarian cancer and patient experience of care throughout England. These profiles have been shared with MPs and local NHS managers by representatives from Ovacome and our support network. For example, in one area of the country a supporter used this resource effectively to lobby her MP and hospital chief executive. This resulted in the appointment of a new consultant and the development of a telephone helpline for GPs to help them to identify and refer suspected ovarian cancer cases.

To build on this work, we have been asking our members for their views on what changes would make the biggest difference to improving survival for women affected by ovarian cancer. The results and insights from this research have been used to write a report which has specific calls to action for the Government and the NHS. The report will be launched in Parliament on Wednesday 16 July (1.00-3.00pm) in Dining Room A of the House of Commons and we are inviting you to join us to help us make our case to your local MP.

Before the launch event, we will be hold a short workshop starting at 12.15pm, where we will provide attendees with a copy of the report, practical tips and materials on campaigning locally and an opportunity to meet with other supporters. We are delighted that Ovacome member, Fiona Mactaggart, Member of Parliament for Slough, has agreed to speak and offer her insights about how to engage effectively with politicians.

The launch event and workshop will be facilitated by MHP Health, who have supported Ovacome with our campaigning activities in recent years. This event has been supported by funding from Roche Products Ltd; full editorial control rests with Ovacome.

I do hope that you will be able to attend. Please note that lunch and refreshments will be provided and a short tour of the Houses of Parliament has been arranged. If you wish to bring a family member to support you they would be most welcome. If you have any questions, or to confirm you attendance, please contact Anna Appleton, on anna.appleton@mhpc.com or 020 3128 8127.

Yours sincerely,

The Ovacome Team.

Making a difference for ovarian cancer patients: Invitation to report launch in Parliament

Wednesday 16 July, 1.00-3.00pm, Dining Room A, House of Commons, London, SW1A 0AA

Written by
TheOvacomeTeam profile image
TheOvacomeTeam
Partner
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Hilsuk profile image
Hilsuk

Hi, sounds great, and am sorry I cant make that date. Hope

the day goes well and look forwards to reading about it.

marianc profile image
marianc

I would love to attend but i live in leeds.

citrine profile image
citrine

I will definitely be attending. Hope to meet others on the day.

baxbird profile image
baxbird in reply tocitrine

I'm now going and it will be good to meet up with others from this site, such as yourself. Not done anything like this before

francescahannah profile image
francescahannah

I would love to attend but going on a cruise that day! Hope it goes well x

Anne-2 profile image
Anne-2

I would like to join you on the report launch day and hope that this is not too late to reply!

Not what you're looking for?

You may also like...

Lobbying workshop for Ovacome members, Saturday 16th November

Ovacome works with national stakeholders to campaign for improvements but we know that through...
SoniaOvacome profile image

Ovacome launch Young Ovarian Cancer Support Network

Hi everyone. I'd like to introduce myself. I'm Kerry, I was 37 when I was eventually diagnosed last...
Kerry profile image

Wales' Official Ovarian Cancer Awareness Year - WOOCAY - Launch

We are planning a spectacular event in Cardiff Civic Centre on Sunday 8 May which is World Ovarian...
Whippit profile image

Ovacome workshop "Defining quality in ovarian cancer services: the patient perspective" on Tuesday January 29.

Ovacome is running a workshop to discuss what high quality care and services for ovarian cancer...

A blog of Useful Resources for Women with Ovarian Cancer

Just over two years in to this journey I've been reviewing the sources of support I have and I've...
Whippit profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.