New on here

[7sarah7]

Been diagnosed recently, seems like one big roller coster, don't know whether I am coming or going thats even before the chemo

[TrishLey]

Dear Sarah,

This must be a scary and confusing time for you. It does calm down and things do go back to a new kind of normal. We are all here for you. If you have any questions please let us know. My advice to you is to make sure you have someone with you at all the meetings , it helps if they are the practical kind who can be supportive but who can listen also to whats been said. Wishing you the best of luck with your treatment xxx

Trish

[Whippit]

Welcome to our friendship circle. It is a roller-coaster at first and everything seems very confusing. This is a great community to make friends, ask questions, and check anything out - obviously only from the perspective of other patients, family members and carers, so not an official authority on ovarian cancer.

Ovacome have a great Nurse-led telephone line you might like to ring. 0845 371 0554.

Looking forward to more of your posts and comments. xx xAnnie

[Hidden]

Hi Sarah,

Welcome to a place where there are plenty of women who have experienced that same roller coaster, myself included. Nice to see you writing a post. If you've got any specific thoughts or emotions or questions to ask or share, this is definitely the place to do it and there will always be someone there with a reply. Annie's point about the ovacome nurses is an excellent one too. What's your main concern or feeling at the moment?

Take good care -

Judith

x

[7sarah7 in reply to Hidden]

Thanks for the reply Judith, no main concern, too many appointment, really hard to keep up with them all, emotions high (about to go to doctors for anti-depressant tabs), 1st chemo due next wk but before that assessment talk tomorrow

Sarah x

[babsclunn]

Hi Sarah

It is a reallyfrightening confused time when first diagnosed it feels like your whole world as been turned upside down but you will get through it and like the ladies already have said this is a great site for help and advice sharing the bad times and the good hope the chemo goes ok and we hear back from you soon

Take care babs x

[7sarah7 in reply to babsclunn]

thanks for the reply, can't begin to tell how I feel, I am at stage 3 high grade, so need answers like how long has it been there to get to that stage, feeling very low x

[thesilent1]

Welcome to the club that no one really wants to join. You're right, it does feel like a rollercoaster ride and I hate rollercoasters lol. Its a lot to take in and get your head around at first but you will soon fall into the way of things once treatment starts and be an old hand in no time! Its surprising how quickly we adapt.

Keep posting on here to let us know how you are getting on and we will all support you. My mantra when just diagnosed after surgery and before chemo was "just take it one day at a time' and this helped me get through it.

I recommend you get a nice cosy throw for yourself and curl up on the sofa in the afternoons and watch a film on telly or have a snooze. I tried to go for a walk in the morning as I always felt tireder in the afternoons. I also felt cold when going through chemo and a throw helped. Now might be the time to learn a craft like knitting or crochet or painting as this will give you something to focus on. I learned how to crochet and have just completed an Afghan throw of colourful granny squares for my eldest daughters bed in her in-laws holiday home. It looks lovely, even though I say so myself lol.

Good luck. Ann xo

[Hidden]

That is a normal reaction, to get a cancer diagnosis, it is a terrible shock to the system so I fully understand what you are feeling. If there is a cancer support centre near you, go and use their services or also contact the gynae liason nurse at your hospital and make an appointment to talk to her. We never think before diagnosis that we would get cancer but unfortunately some do and some dont. I hope you have an understanding gp that you can talk to. If you are in Ireland, check out Arc Cancer Support Groups, they are totally trained listeners and counsellors and all is confidential. They also do light therapys to help the patient

[Samjane]

Hiya,

Welcome to a site that no one wants to join but we are here.

Its awful shock when diagnosed. I was diagnosed in July, had chemo and 4 weeks post op now. Stage 3 advanced. 3 more chemo to go.

My head and emotions have bern all over for months. We are all in it together on here, ive met some fab ladies on here who will always help and chat to you.

Take care hun, message anytime you need chat.

Much love

Sam xx

Ps. I dont know how id have coped without this set of ladies

[EllaRose]

Good Luck Sarah. The roller coaster description is so correct ! Its good advice to take someone in with you to every meeting and ask them to jot down notes as you will forget things, also go through questions you have with them before your meetings. If I chicken out of a question that I've told my friends I want to ask (white coat syndrome I think sometimes) they will speak up for me. Also I have a few great friends are now my chemo buddies & one comes with me to my chemotherapy every week, and I look forward so much to the day with them and catching up that it overtakes the fact its a chemotherapy day. I'm stage 3c and three years into this, only been in remission & out of treatment for 6 months,2 years ago so keep fighting. Just had a manic day at soft play with my 5 & 7 year old - you will find the fight in you to deal with this x

[helenhoops]

Hi Sarah - it took me a while to get my head round things when I was first diagnosed in September - it was ages before I would even talk to anybody about it and I didn't dare look at anything on the internet. Eventually i plucked up courage and can honestly say that even just reading other ladies' posts on here helps and gives me reassurance that's there's always someone to talk to. Take care - Helen xxx