Well just a wee rant !! Applied for this allowance in January this year. Eventually got an assessment day for last month but had to re arrange as having treatment . Have not heard anything back after 3 weeks and when I phoned today was told not able to give me another date or let me know when this would be !!
Anyone with a similar dilemma. Mobility really poor due to joint and back pain but on a positive note continuing with avastin and appears to be working . Next scan due in October xx
They take in total ten months , I was at citizen advice the government did not allow any time targets when decision which is disgracefull . You then hear in around two months if your getting allowance , I got low rate around 50 per week ,make sure you keep telling them haw bad your mobility is , think of your very worse day remind them on every answer , I wear a hearing aid I am going on two hearing aids as Clemo has affected my hearing 2 points for that , 6 points for needing help to get off the chair 8 points what you need in total . Good luck it's you and one other person by the way .
Dear Ally, That's so frustrating. I was staying with a friend in Fife a couple of nights ago and I think her experience was quite different. I wonder if it depends where you live. I really hope you hear from them soon. I get joint and back pain with Avastin - some days worse than others and you really do need those payments if you can't get around.
Hope it's sorted out very soon. xx love Anni
Feeling lost and so alone 
Ultrasound and internal scans clear-what now😔
A bit anxious 
Can't shake the fear
