News from Cork

Hi ladies, it has been far to quiet on here recently. Please remember there are Ovacare events, coming up in Cork and Limerick end of November and the beginning of December. Please go to www/ovacare.ie to check the dates. So I was looking forward to completing Gemzar regime a month ago and hiccup!!!!! It had stopped working. I got a few weeks reprieve to gather myself and started Caelyx last week. I found the first few days reasonable but at weekend bowels played up. By yesterday I had recovered and feel much better but its back to treatment again next Weds/ I need 12 infusions, I understand it take a while to kick in so hoping this will clear all the little buggers away. My oncologist says its still confined to one area but as its near muscles and nerves it does cause pain. That is another issue in itself. I have vowed to try and get on top of the pain with help from my gp and nurses. You know ladies and any gents reading this post, the information gleamed on here is invaluable so I would ask you to use the site and pop in and let us know how you are doing or how your partner is doing. Any tips ib Caelyx gratefully appreciated

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Hi Suzuki. I didn’t know about those events. I’ll look them up now. I think I’m subscribed to the UK group instead of the Irish one because I get info about their events. I’ll look into that.

I’ve been on Olaparib for 5 months now. So far it’s going well and I’ve very few problems. I’ve had a busy couple of months with work and my Dad has been in & out of hospital. He has dementia. I moved back to where I was born to be near family. All that is going well.

It has been quiet here so I’m glad you posted.

Good luck with the Caelyx. Hopefully the next 11 treatments won’t be too bad 🤞. You’re one of the people on here who inspire me because you’ve remained strong and overcame so much.

Sending hugs 🤗🤗🤗👻🎃

Anne

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Hi Anne, usually Sharon one of the admins post on here when events come up and she also posts on Facebook page, if you are on face book. It is hard when a parent is ill, my late Mum had dementia when I was first diagnosed. I remember going into hospital to see her but out of the blue, she said, you speak like my Joan but your hair is different and why aren't you at work? Its hard when they get clarity like that for a split second or so.

[delia2]

It’s so nice to hear from you! That’s a shame about the Gemzar. I’m on Carbo caelyx for first recurrence and had my first treatment 10 days ago. Mine are four weeks apart. I was nauseous and severely fatigued from days 3 through 8. I had acupuncture on day 8 and it gave me energy. I’ve been well since then except for slight nausea. I’ve been taking half a nausea pill in the morning. Way better than Carbo taxol so far. Good luck!!

[Hidden in reply to delia2]

I felt a slump on day 3 as well and disaster with the tummy. I think taking one Movicol per day is enough to keep things turning over and so does my gp so doing that and its working for me. The pain has settled a little but got pain relief to help that from gp. He felt pain relief at night only and this is also working for me thankfully. So bloods tomorrow and more Caelyx on Wednesday.

[Lind58]

Wishing you strength ❤️

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Thank you, I need it,