I wrote this mangled verse today to take my mind off things and to try to explain the real feelings of those of us who live with this disease.
My world goes on , you look away
It won't be real, if you don't say
I look so good , but inside I break
How many hours, have I spent awake ?
I'm scared as hell , my temp will climb
I know it can happen anytime
It's seventh day , and danger zone
And I have never, felt so alone
You all called me , one by one
I have to agree, that life is fun
No gloomy word, will pass my lips
A " heroine " right down to her fingertips !
You know I always try to hide
The worry that is deep inside
That false smile , is full of lies
My acting surely, deserves a prize
And so my loved ones , look with care
You'll see them running everywhere
I'm not alone, with this gloom and doom
Cos I have elephants in my room !