RA nurse called me as a quick fix as they can't send me a script for anything else back on to MTX injections and reduce Pred slowly and see if I can stomach MTX again.
She is keeping fingers x for me if it works after 5 weeks off but I have been told if I become like I was in Jan just immediately stop again.
OK MTX bring it on, lets take my RA pain down!
They are all reassigned to ICU and you could hear them frantically clearing admin and calls down but Helen cheerful as ever.
Good news, Dee, hope it works for you this time. I used to eat stodgy food like pizza on MTX day.
I am on low dose of it again for the last four weeks, to anchor drug infusions. I don’t have much in the way of side effects with 7.5mg injection pen.
At higher doses it brought on dreadful fatigue and headaches after activity.
Let’s keep our fingers crossed 🤞 you do feel better in a few weeks.
I imagine they are all reassigned, from every branch of healthcare, just now. Very hard on them.
Straight back in on the ones I have which is 20mg so fingers crossed it worked on pain and bloods just awful side effects so they had to take me off they are hoping a rest off might help for the time being or at least reduce pain levels whislt C19 is still around.
Good luck - hope that you're OK with it this time 🤞
Oh Dee !!! We are in this together 🙄I’m surprised they couldn’t give you a prescription for a lower dose just to ease you in. If my symptoms are better after 2 weeks with no methotrexate they are going to restart me on a lower dose. I do feel sorry for all nursing staff no matter what department they are all taking on extra roles often taken decisions without much supervision. I applaud them 👏👏👏👏
I said to hubby last night I might give it a whirl again and he was worried hence the call before I went back on as I did go down hard in Jan and Feb with side effects but at least RA nurse knows and we will give it a whirl.
Hoe you see some light in this week too! Though if you get to see the light at the end of your tunnel you might be road blocked with tunnocks.
Oh Dee I hope the MTX gets to work quickly and that you're not troubled with any side effects. x
🤞lots of carbohydrates the day after MTX day helped my gut a bit. Porridge .....yummy.
Started that already as going in tonight to kick MTX back in to the body carbs do help some what.😍
Hope MTX is better this time around for you. As others have said, its stodge city all day for me on MTX day - oh and coffee too for some reason (which I could never stand it before!). Fingers crossed for you 🤞
thank you a bit of trepidation but I refuse to go back to the start of this treatment plan so will endeavour to keep on trying!
Good luck! and best wishes 👍
Hoping this works for you lovely and you get some relief from the RA pain with minimal side effects. x
Hi Deeb just to say I started mtx on Saturday night for the first time , I just took loads of advice I read from others on here , drinking loads of water and eating stodgy food on the day I take it , so far so good ..but it’s early days so fingers crossed heh x
It did work I was on pills but nausea and fatigue so bad they put me on injections but then side effects were horrendous so they took me off as had breathing issues too. However the plus was bloods were good and pain almost gone.
I do hope this works for you second time around , I am also on hydroxy since jan 19 , and only on 10 mtx, have you not been on any other dmard?
Not yet I was due respiratory clinic but c19 kicked in so all appointments cancelled as we were looking at what to do next
Well you take it easy now and hopefully you will benefit from your treatment x
I found for the first couple of months I felt very tired the day after, felt sick and had an upset stomach, I took mine before I went to bed. Now I have no side effects with it, thankfully, and no pain. I really hope it suits you this time. Xx
i was on metatrixate went up to maximum dose cause so much trouble took it on saturdays and went into work , luckily work was understanding if it hit me the wrong way in the end iu had to change to the lefludide ( Close enough) which i take every day with sulpasatine and the quinine one hydra something . i did not get such a hit to the system because i was take the combination everday . . best thing to do is discuss it with your nurse if you are having problems
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