sylvi10 years ago

Pam, have you tried b6 and b12, i am finding these two vitamins have made a big difference to my depression. You can get them from asda and other stores or savers type shop. They are not to expensive either.

Yes the weather has been very nice and i have been out and about in my go faster scooter. LAst week we were in devon on one of the sun holidays which was lovely. The weather held out for us too. We had a better time in four days than when we had 2weeks in cornwall back in june/july. It was very wet while we were there.

I might go up the village later to pay my papers depending on how i feel, as i have had a bad night last night.

It is nice to hear from you again and that life is treating you well.xxx

allanah in reply to sylvi10 years ago

hope you get a better rest tonight Sylvie

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sylvi in reply to allanah10 years ago

Thank you Allanah,i've just had an hours sleep.xx

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cinders10 years ago

Dear Pottypam

Thank you for your honesty and the raw reality of what RA means for you. Ita a lonely disease I find. You suffer and struggle alone. This website has openeed my eyes.thanks for posting

allanah10 years ago

Hi pp

You are one lovely brave lady. I'm so glad you accepted your doctors help rather than try to struggle on alone. I think depression is one of those illnesses , quite like RA, that is sort of hidden, and it takes a while for you and your family to notice. I got a little down when I was first diagnosed but luckily didn't get into full depression. I felt bad enough with that never mind all the problems and illness you get, so hats off to you for managing so well.

Hope your pain settles quickly and you get good news sooner rather than later on your therapy. love Axx

pottypam in reply to allanah10 years ago

Thank you for that , I try not to let my family what little i have ,see me when I am down even though seeing them cheers me up, silly really . Have had a few mild panic attacks and have to make myself go out alone , but dont do it very often as I just dont feel "right" . But will have to make myself do it now as my daughter who is really my carer has got herself a lovely new boyfriend so have told her spend her time with him when not at work , So with gritted teeth will go out and do what I can ... we have too you know or go mad lol

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allanah in reply to pottypam10 years ago

Lucky girl for having a lovely boyfriend and an even lovelier mum for letting her get out and about. My mother in law would NEVER have done that!!!! xx

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pottypam10 years ago

Hi Sylvi,

I have to be careful with whatr other things I take as like my medication it ahs to be ok with my GP as I am Warfrin for life an it can be affected by the silliest things and make my INR level go to high or to low . I have to try and keep it a level that ok for me but makes a lot of things impossible to have . Would you believe cant have too much Broccoli, an some vitamins can alter my levels , But will ask my GP. It is because of the Warfrin that can not have acupuncture and not even my pain injections anymore as my required level is just above the level that they say is safe .

What part of Devon did you go to I lived in Devon for several years. I was in Great Torrington , well in a hamlet about 7 miles outside ,was a loverly place but it being one of the wettest counties in the country made my arthritis worse . But did love living there . As we could get to Cornwall in 15 mins .

sylvi in reply to pottypam10 years ago

Pam we went to dawlish warren. I found my joints were better there for some strange reason. It was a really lovely break.

See your dr about those b6-12 as they have made a difference to me. I hope you can take them as i find i am worrying less when i have a bad night and i am a bit civilised if you know what i mean. I know you are having a having a harder time of it because of the warfarin and i send you gentle hugs.xxxx

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Hidden10 years ago

I used to live in Cornwall as an art student and then stayed on there for another year and got married there too. I found my eczema used to go nuts though - fine in the summer but hellish in the winter because of the damp. Even though Orkney is much colder and windier and far more remote from the major centres etc - it isn't damp so doesn't seem to adversely affect my health in the way that Cornwall did weird as that may sound?

Well done for having an upbeat day and enjoying the sunshine - I'm so like that too - if the sun is out and the world is glowing I usually just feel better despite everything else. I hope the weather and the positive frame of mind continue for you. I had a three week bout of all over pins and needles last month and after doing my research I concluded that it was because of high inflammation levels in my soft tissue. Not everything is down to our mental state - sometimes it's physical. Tilda xx

oldtimer10 years ago

pottypam - reading your post made me nod my head all the way through - it sounded just like I've been feeling - and although sometimes I feel it's not worth struggling on, most of the time I just put up with it just like everything else. I don't think I'm "depressed", but realistically feeling down about how little I can do and having to concentrate on thinking positively about the "I can do" statements. I found myself the other day saying to someone else "Don't say what you can't do, say what you can do" - which is what I say to myself.

One of the things I found was that the pins and needles were worse sometimes when I was anxious and I worked out that the tenseness and breathing too fast and shallowly were making them worse. Doing my deep slow breathing for calmness helped to reduce the pins and needles back to a background level.

helixhelix10 years ago

I don't have that degree of pain anymore, thankfully! But you have my huge admiration for battling through it. I really struggled to cope though those times, and your post brought back how truly awful it was to have to try to keep going, and how it slowly dragged me further and further down. I really hope that your good days continue. And that you find the energy to start nagging about getting started on Toczilumbab, three months is just too long to wait! Polly