Tomorrow marks the 1st anniversary of my RA diagnosis, and to be honest I am still struggling.
Being 23 and living alone with a diagnosis of RA has not been easy. One year ago I could not walk, get washed and dressed, drive or even pick up a cup without dropping it.
A year on my hands are still swollen and day to day life is still a struggle. I am very lucky I have the most amazing family who come help me with housework and cutting the grass!! I am a mental health nurse and have been supported very well at work but I continue to get comments about looking well and if i cant do something I still get "the look".
I have lost friends as they can not understand my illness believing I do not go visit them because I dont want to when in actual fact it is because I am unable to walk up the 4 flights of stairs to get to their flat.
I take approx 18 tablets a day and inject Cimzia every 2 weeks. My disease activity score is still high and I was informed remission is unlikely if I am lucky I may be able to get down to Medium activity.
But even though day to day life is hard and at times I cry and become frustrated I know I am lucky, RA was caught early enough and even though it is not the most positive outlook I am feeling positive I will not let this beat me.
So my advice to anyone is keep going and keep smiling, this has made me appreciate the life I have got so please please do not waste it, you can do this.