Hi there! I'm new here - I have just found this site and after 28 years of this disease am trying to keep positive but after 20 surgeries and constant pain its not so easy these days - I don't seem to bounce back so quickly now. I'm 56 years old and have raised 2 children and still working 25 hours a week, but I get beyond tired! My Husband is amazing and looks after me very well, and my daughter too is very understanding of my limitations. The children were 3 and 5 when I was diagnosed, and I was 28. I found the early days very hard to cope with as I was very fit and well and played netball and tennis and also ran. I can't manage any of those things now, but can potter in the garden and I enjoy reading. One really good thing about working in a school is children bring out the best in you and also the great holidays allow me time to rest and recharge my batteries, so I am still smiling .....just!