I got my letter from DLA and I have been succesful first time. I have been awarded High rate Mobility and low rate care. It is such a relief to be finally acknowledged that I am disabled and have been for some while. I got my blue badge a month ago, and my bus pass. I am now looking at other things I may be entitled to. Its a shame that at 40 I am at this stage in my life and would prefer to have my old life back, but as they say life begins at 40 I amgoing to try and enjoy what life I do have.
The ongoing encephalitis recovery is still slow, and I have good days and bad days which are similar to the RA days. I had my eyes tested on Tuesday and found the the encephalitis has damaged my eys. My eye pressures are up at the maximum safe level and my eyesight has significantly deteriorated. I kept all my old eye test results since 2008 (sad I know) and have had them tested every year due to the amount of time I spent at a computer. They have never changed during all this time. I now have a pair of glasses being made for me and will be ready next week as I am severly short sighted. I did ask the opthamologist if it could be related to the RA and she said she didn't know. I am going to see a neurologist at the end of july and will take all this information with me so that they can see how much the illness has affected me. As I was only finally diagnosed with RA in February 2012, I am still learning about what has been damaged by that. I have my first proper follow up consult with the Rheumy middle of june so I will get all the extra scan and mri and x ray results then,
My pain levels are increasing and my sleep is getting disturbed again> I toss and turn so much during the night because my shoulders, neck, elbows, back, legs and more bits hurt. Finding that comfy spot is a nightmare.
I was getting a bit depressed with all that has happened in the last 6 months but I can see that life should start to improve soon. For today though I am happy that I have been believed.
sending my happiness to one and all