Hi to everyone. I found this site about 3 months ago and find it very informative and has really helped me understand my RA more and to see I'm not alone. I decided to write this in the hope of getting some advice from like minded people that have an understanding about RA. I got diagnosed 2 years ago and have had a real problem getting the right meds suitable for me. Some have made me really sick. I was originally on sulphasalazine and then methotrexate tablets but they made me sick so went on to injecting methotrexate for about 5 months but had severe itching, sore throats, ulcers and blurred vision. I was told by the consultant to stop taking the methotrexate for 4 weeks to see what side effects disappeared if any. It then took me 3 months before I could get to see the consultant again, side effects had all gone but full on RA was bad. Then put on Leflunomide which was no better so I agreed to go back on the Methotrexate as told there was not much more I could be given. Have now been on the injections again for around 5 months with all the side effects I was getting before and have been given a higher dose to try for 4 weeks. Took the first new dose last Monday and woke up Tuesday with a severe headache, really blurred vision and felt awful, there was no way I could drive my car. I called the RA nurse helpline and I'm still waiting for a reply a week later (this is normal as I have this every time I have called). I am now due to take my next injection today and I'm really concerned about taking it. I also had a MRI scan done on the lumps I have on my heels at the beginning of August and I've just received a follow up appointment for January. Part of my question is, is this normal or should I complain. I feel I'm just a hindrance on the health service.
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