Today i saw my doctor / specialist , He asked how i was doing " I replied how long have you got " . I explained where i was getting my pains and how rubbish i was feeling , after examining me he said i was showing signs of Rheumatism( he didnt have my blood results but on previous visits he said my RF was rising) . He is now sending me to the local hospital to see the BIG consultant rheumatologist . He said they can sort out the issues with my feet ( insoles for shoes etc ) . He has given me different anti inflamattory and pain killers .
So on one hand im starting to get some where with the results . BUT its another wait for an appointment .
I will keep you all informed as to my progress .
O i also applied for DLA but was turned down . Think i should appeal .
Many thanks for listening Julie
Written by
bradford
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That is good Julie although I'm really not sure why it is taking so long for you to see Rheumatologist and get a proper diagnosis and get started on DMARDs if you have a positive RF now. But I'm glad if you're glad and getting somewhere is the main thing although I wish for your sake it was a bit faster! TTx
Julie and Tilda,I have been waiting since i had my ULTRA SOUND SCAN on the 19 March and I saw him last Friday 11th May Got a cancellation slot after I rang to ask about delay and saw I him on the ward for the results of scan.OA and Inflammatry athritis, this is what i was told before.Given appointments for OT and PHYSIO and Discharged.Was told if i needed to see him i could contact .All these people must be extremely busy, as these processes take so long. hope you get your Appointment soon,CHIN UP Patx
Thank you for your replies , I am sick of the waiting but hopefully this next appointment will give me more answers . Its the pain and tiredness that gets me down , and not being able to do what i used to , without been shattered or in pain . I do hope i dont have to wait another 3 months as i did the last appointment . Fingers crossed it wont be too long .
Hi Julie, no wonder you feel like you've hit a brick wall.... You can ring the consultant's secretary or ask your GP to and request a more urgent appointment. Even if it doesn't get you a earlier appointment at least you'll feel as if your being a little proactive.
As for your DLA depending on the reasons they refused you can appeal, make an appointment at your local CAB or welfare rights org a.s.a.p enlist their support and get your appeal started.
Good luck, hope you don't have to wait to long for app.
It took me from sept 11 till march 12 to get a diagnosis. Phone sec ask for any cancellations. Good luck!!!
These conditions are very hard to diagnose sometimes and they don't want to get it wrong and put you on very powerful and potentially toxic meds unless they are absolutely sure they've got it right. I would hate to be on these drugs if I didn't feel pretty confident that they were needed.
It took me from March last year to November to get my diagnosis and start meds and I haven't seen a rheumy since. I think the most important thing is to record all symptoms in a diary and photograph anything visible. I don't know about DLA but guess they prefer a firm diagnosis to assess - which must be pretty hard for you I agree but you just have to be as pushy as possible and do as Beth suggests. TTx
Hi Bradford
As Beth58 mentioned, the local CAB can often offer support when appealing a DLA claim. There is also a useful booklet available to download from 'Advicenow' website called, 'Turned down for DLA/AA? Or think you're not getting enough?': static.advicenow.org.uk/fil...
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Mri results are in and i am on antibiotics as well......
Big Day for me. Big Rant too.
Can you request blood test results? 
appointment with the rheumatologist 
NHS CARE ..
