Anyone else had probs with getting stronger meds? Ellie got a emergency appt today at james Cook, (102 mile round trip..total waste of time today.) but we saw a registrar not consultant . She has been taking Piroxicam melt since Friday, 1 a day, 8 Tramadol & between 6 & 8 paracetamol a day. Had awful fatigue..which I assumed was the Lupus, yet the registrar has said to wean her off the Tramadol ?! I tried to get across that it`s not a continuous fatigue & that the tramadol does help the pain a bit...to no avail ?! Problems with the `nuclear `count in her bloods & the best bit ?...they wanted to admit her but Rheumatology dont do Peadiatric beds & paediatrics dont have any empty beds??!! So we have to wait for the call...even the nurses advised us to get her admitted through our GP.
Sorry to drone on, but really felt worthless & had a totally wasted trip today. Ellie totally demoralised.