Does anybody on here also have Autoimmune polyglandular syndrome type 2?

Sorry to butt in here. I'm a member of the Thyroid, Ovacome, PA and GFG pages but have recently been diagnosed with Autoimmune polyglandular syndrome and am waiting for a cortisol test for adrenals and referral to a rheumatologist. Just wanted to know if anyone on your NRAS page also has this condition. Thanks

8 Replies

  • Hi Irene

    Sorry to hear of your diagnosis. Is this known as PGA? I had a friend who had this, but isn't it inherited? I am not affected. Are you doing research or are you needing support?

    Julie x

  • Hi Irene

    Welcome I'm sorry I know nothing about your illness, but I'm sure your welcome anything that is autoimmune sound awful.

    let us know how you get on when you see a Rheumy Dr.

    Best wishes


  • Hi Julie. It's a personal Q as I have just received a diagnosis and am now going on to have adrenal test, another endoscopy; have also been referred to rheumatologist and am wtg appt. I've given a quick Google search and it seems to be a label for when a series of autoimmune diseases appear. I am getting various aches, pains and am feeling washed out but so many other things all present the same symptoms, e.g. anaemia, B12 deficiency, Vit D deficiency, hypothyroid and the stomach condition. Just thought there was a chance that someone on here might have it as well.

    @ Tricia, will certainly update when I get some further info from hosp.

  • Hi Irene

    Auto-immune disorders tend to travel in convoy, as you probably know! I guess it's possible that some of us may have 'more' than we have been diagnosed with, such is the world of A.I. Many years ago, before RA, I had glandular fever and it has always been an open ended question as to whether this might have set up the early receptor to RA.Who knows?!

    I wish you well :)

    Lyn x

  • Irene, yes keep us posted, and let us know how you get on

    All the best

    Julie x

  • good luck too keep us informedx

  • Thanks guys :-)

  • Hi Irene, sorry for late reply just catching up.I had a test last year for Addisons Disease which I know is the body's inability to produce adrenalin properly.

    Thankfully though all was well, I do though have to go to the Endocrine clinic every six months or so to be checked as I was also treated for over active thyroid problems in past and am also having high Prolactin Levels. Had to have several brain scans in the past to rule out any piturity tumours. Not sure if this is anything to do with what your having but I think a lot are somewnat related.

    Take care


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