Agony diwn my left hand side joints

[Shyandretiring]

My rhumy Pain is worse on my left hand side i.e. in my left foot/left ankle/left wrist/left lower back and left side neck My right hand side mostly mild pain if any at all , anybody else experienced this ?

[sylvi]

Mine is down my right to start with but now it is all over at times. xxx

[Shyandretiring in reply to sylvi]

Thank you silviWhat meds are you on and how long since your diagnosis

Kind regards

Shy

[sylvi in reply to Shyandretiring]

Over 20yrs since i first had this disease and it doesn't come on its own either. As to drugs too many to mention i am afraid. xxx

[Shyandretiring in reply to sylvi]

How are your pain levels 20 years on and have you done the whole gamut of dmards now or are you on biologics ?

[sylvi in reply to Shyandretiring]

I can't take biologicals as i always get a chest infection. xxxx

[Shyandretiring]

Sorry to hear that

I hope your pain levels are low these days

Kind regards

Shy

[helenlw7]

My pain started on my left side but soon moved to both side. I was diagnosed 20 years and I still have pain all the time.

[Shyandretiring in reply to helenlw7]

Hi Helenw7

Sorry to read that, is it low level pain as I am in the middle of a flare up and its agony at the moment until the sulfasalazine kicks in ( 8-12 weeks ) and I am on my 4th week 😳

[helenlw7 in reply to Shyandretiring]

Some of my joints, elbows, wrists and hands are low level pain today but my fingers and shoulders are very painful, and have been for a while. I’ve had ultrasounds of my hands and left shoulder and they’re badly damaged. I’m waiting for a a nerve block in my shoulder. Not every day is the same. I also have osteoarthritis but I’m not sure which type of pain is which. Yesterday my right hip joined the party!

[Shyandretiring in reply to helenlw7]

You poor thingHow do you keep positive , is it because some days you feel better than others ?

[helenlw7 in reply to Shyandretiring]

I think so. I’ve always been a very positive person, but I have a lot of health issues and big problems with my mobility, so staying positive isn’t always easy.

[Shyandretiring in reply to helenlw7]

Your a legend helen as people try to be empathetic but unless you have that pain people cannot know how difficult it is for youAll the best going forward

Warm regards

Shy

[helenlw7 in reply to Shyandretiring]

I agree with you about people not understanding your pain unless they also suffer pain. I have been living with my daughter since July 2023, while my house is being modified. She now appreciates my bad days when it takes an hour before my fingers loosen up enough and then I have to get out of bed. My daughter injured her back last week, and she now’s knows what pain is like!

[zen4]

Hi Shy

many factors are going on in your life that effects pain. Maybe one side is more dominant and used more or some other accident effects 1 side and not the other or it could be posture related. I never realised I placed most of my weight on the same side until I learnt more about posture and became more self aware. The disease sometimes attacks one side first even though RA is fairly symetrical so there's many reasons. Try and become as ambidextrous as possible!

[Shyandretiring in reply to zen4]

Thank zen4Yes you could be onto something posture related I might have a look at th Alexandra technique ,

What did you do posture wise to address it for you ?

Kind regards

Shy

[welsh12]

Mine is down the right side toe ankle knee but shoulder wrist on left side

[Shyandretiring in reply to welsh12]

Its so random !

[zen4]

I learnt all about correct posture from my OT but not sure if you would be able to get a referral to see one at.present? Alexandre technique is also good but you would probably have to pay privately for that. There's a lot of info to go into for posture, too much for this forum

[Shyandretiring in reply to zen4]

Thank you Zen 4

I have a lot to learn

Take care

Shy

[Stills]

note my diagnosis is Adult onset Stills disease. Lots more info in my bio.

Yes my pain has always been worse on the right side and in over 40 years that’s not changed and it’s still worse in that side. Over those years the pain has spread of course but the joints that were most affected at onset always hurt more that the others. Weird isn’t it.

[Shyandretiring in reply to Stills]

Hi Stills

Its so random I think all the prefessionals and us still all in the dark to how it all works !

[J1707-]

yes this happens in my right side and also lower back . I was re diagnosed from RA to inflammatory psoriatic/ axial spondyloarthritis .

[Shyandretiring in reply to J1707-]

Is thar worse than RA it sure sounds like it !

[J1707-]

you can Google it . It’s treated the same but it can effect tendons as well as joints

[Jfw24]

I either get it down one side or the other, predominately my right side

[Shyandretiring in reply to Jfw24]

Thank you Jfw24The symptoms seem very random.

Shy

[Jfw24 in reply to Shyandretiring]

RA is very random, it turns up (for me) in one joint for a few days and then travels to another and stays there for a few days before moving on

[Shyandretiring in reply to Jfw24]

I know there is no pattern to it so you never know what you have done either rightly or wrongly to influence it either way.

[LucyZuma in reply to Jfw24]

Yes that’s me too

[Pricetowers]

Hi

I have my worst pain down my left side of my body, I have no relief from this any help please

[Shyandretiring in reply to Pricetowers]

What meds are you on and how long have you been taking them ?