Hello lovely people just wanted to find out if anyone has experienced abdominal pain linked to inflammation of the bowel/colon and a possible diagnosis of colitis. Been in pain for a few weeks even took myself to a and e just given pain killers as soon as I mention I’ve got kidney stones the pain is put down to that.
Wishing you all a Happy Christmas 🎄
unfortunately yes- I have been diagnosed with interstitial cystitis never even heard of it. I got oh well it comes with RA no cure. Thanks a bunch 🎅🏻🧑🏼🎄
All seems to come with RA what warriors we have to be. Thanks for reply
With colitis, you normally experience change in bowel habits. This can be loose stools, with pus or blood present. In which case your gp should consider a colonoscopy to see if you have something like crohns or ulcerative colitis. Inflammatory bowel diseases are found in around 10% of rheumatology patients, so worth investigating.
Thank you for your reply I have a referral done for a colonoscopy have to see what they find. A nice Christmas present!!!!
The bowel prep is worse than the procedure itself. Hopefully give you some answers 🤗
I’ve had one before I did smile when they said they’d flavoured them now. Fingers crossed it shows what this pain is.
rituximab gave me bowel pain and rather severe diarrhoea. I had a colonoscopy which diagnosed diverticulosis. The diarrhoea lasted 6 months and stopped as quickly as it had started. Needles to say itdidntworkfor me as I flared within that 6 months, so I declined a further dose. I can’t understand why I was offered it tbh. Bowels fine with no problems for 5 years taking baricitinib, which worked fine until recently. Advised it was no longer doing anything for me and I switched to Benepali, which started to work within a few days. However after approx 7 days the diarrhoea has come back and it is severe, although they say not caused by this medication. I disagree. After 3 weeks the benefits seem to plateau out, then reverse - so I have had to stop this medication too. Last dose was 4 weeks ago, but the diarrhoea is still very bad. Currently waiting to try Adaptacept, but I’m very nervous about this, as potential side effect is listed as diarrhoea! However they are pushing me to try this. I feel really ill atm and flaring quite badly.
So sorry to hear that fingers crossed the right treatment is out there my first colonoscopy came back with diverticulitis but touch wood the bowels have been ok. I am a Rituximab/methotrexate girl but the Rituximab wears off too quick so I expect a change in the new year. It’s hard this waiting game especially this time of year I think I’ve got shares in the pain killing companies.
Sorry to hear you’re struggling to find a med without side effects. I’ve been on benepali for 8yrs with no issues. I did get taken to hospital in March with severe rectal bleeding, I lost around 750ml of blood. I had to stay in hospital for 2 days for the colonoscopy, as I have severe adrenal insufficiency, and the diarrhoea can cause a crisis. It found the bleed had been due to diverticular disease, causing a blood vessel to rupture. Unfortunately I am on aspirin, was clopidogrel prior to the colonoscopy, but I’m at high risk of another life threatening bleed, so they switched to aspirin as it’s not as long acting. Thankfully I haven’t had any further issues, although it took 7 months to get my haemoglobin back to what it was, so have been more fatigued than usual. Hope your new biologic settles things for you 🤗
Wow such a warrior I have nothing really to complain about. Take care.
It’s bizarre, I have an identical twin, with no illnesses, and I just keep collecting them. That’s despite a healthy diet, and exercise all my life, as I was a nurse so had healthy living drummed into me. The adrenal insufficiency, is from being on steroids for polymyalgia and giant cell arteritis, where steroids are the only treatment. Unfortunately they atrophied my adrenals, so I produce zero cortisol, which is why I had the stroke, which led to the adrenal insufficiency diagnosis. It’s like a set of domino’s knock one and they all tumble down. Thankfully, I’m always a glass half full, and don’t let it all get to me. Take care x
gosh sorry to hear this. It’s such a complicated disease. Thanks for reply, best wishes to you.
Hi, I’m glad you got sorted although it took sometime. Best wishes to you.
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