Any one used Yuflyma

[Beachwalk]

I have had two injections, and it has aggravated my gum disease badly.

My RA disease in hands and joints are also getting worse

please can you let me know how you got on with Yuflyma

are my reactions normal ?

[KittyJ]

if you put that into the search box and filter for NRAS then all the past posts about it will come up 😊

Most drugs we take can take some time to work so I wouldn’t expect it to work after two doses, of course whilst you wait for it to work your RA can get worse but hopefully you won’t have to wait long to start to get some relief. Side effects can improve over time taking a new drug as your body gets used to it.

[Beachwalk in reply to KittyJ]

0 public posts

Sorry, we don't have any public posts matching Yuflyma

I did try before posting

[Neonkittie17 in reply to Beachwalk]

It’s always good to ask on here anyhow as well, as you’ll often get interaction from someone with experience and an exchange where you can ask something is helpful to many. Sorry I don’t know anything re your med though. Your reactions could be that your RA was in a bad place as far as inflammation flaring before you started your med? Some biologics do have a more instant effect for improvement such as some anti-TNFs but most take a while longer to show good effect. Good luck and hope your med works and I’d definitely let your rheumy nurse know re your reactions. As KJ says, it takes time for your body to get used to a new med too.

[Boxerlady in reply to Beachwalk]

Maybe try Humira?

[KittyJ in reply to Beachwalk]

you’re in the group so you can see private posts too. I just checked and there were more than 10 posts ☺️ You could try searching adalimumab too, the drug it’s a biosimilar of.

[medway-lady]

Is it a new biosimilar like Benapli is Etanercept and originally Embrel it might be an idea to look up drug name rather than brand.

[AgedCrone]

I think you need to speak to your rheumy team about how long RA drugs can take to work. Some people are fortunate,& get helpful results from their prescribed drugs, within a few months…others take many months….& a lot need to change drugs a few times before they hit upon something that works for them.

We can only say what happens to us on a drug…..but sadly we can’t offer ideas on alternatives ……but after only two injections.I expect you might be advised to try a little longer.

I know this is not very helpful to you, but it is said RA is a Marathon not a Sprint…..…so try your rheumy team - to see what they advise.

[Sapphire1701]

Hi Beachwalk,

I’m on Yuflyma. Switched from Humira due to supply problems.

I’m so sorry to hear about the symptoms you’re experiencing. I haven’t noticed any huge changes in switching to be honest, but appreciate everyone is different. I regularly get flares but I think due to peri menopause, (and stress) which also affects my gums. But for me I don’t think it’s the drug change.

I hope you find some relief soon and def worth speaking to your Rheumy team.

Sending best wishes x

[seronegativeRa]

I’m currently on Amgevita, a biosimilar to Humira, and will be switching to Yuflyma in a few weeks due to a change in hospital trust. So far, I haven’t experienced any significant side effects with Amgevita; in fact, it’s been the most effective medication for me with the least side effects, especially compared to DMARDs, which didn’t work well with my body.

I would definitely recommend reaching out to your rheumatologist or nurse to discuss your concerns, as medications can affect everyone differently.

In my case, I noticed the benefits of Amgevita almost immediately. It’s been a year now since I started, and although I still experience flares, they are much shorter and often triggered by overdoing things. I’ve spoken with many people who say Adalimumab (Humira, Amgevita or other biosimilars) has dramatically improved their quality of life, including myself, but I also know others who didn’t see the same results or developed a tolerance to the medication (someone I know did amazing on it for about 6 months and now it’s no longer working for them, I also know someone who’s been on it for 18 years, and would be bed bound had it not been for this medication). If that ever happens, my nurse reassured me that there are other biologics we could try.

Wishing you all the best!

[Tealblue2]

hi. I’ve been taking it for 3 months now. I don’t suffer any sides effects thankfully. It did take nearly 3 months to show full effect. However it isn’t completely controlling my RA. I take salazpyrin as my dmard. This was increased by the consultant yesterday with the look to include something else to the mix in a months time. I am on 10mg of steroids a day as well and with this combination feel the most well I have felt in years. I was very unwell before I started it and have come a long way in 3 months.

I really hope you have success soon. I would call your advice line about the gum issues though

[Mich1701]

I was switched to it from Imraldi. Only had 2 doses so far but as yet not noticed any difference apart from injection doesn't sting like the Imraldi did. Don't think it has citrate in it. Think what used to make the Humira sting til they reformulated it and took it out. Imraldi had citrate in, Yuflyma doesn't.

[ExAcc]

I was put on Yuflyma in January and all my symptoms are worse than before, which was bad enough to go on this first biological! They are not listening to me because my bloods have improved and are trying to say my symptoms are down to the Fibromyalgia I have too. I can no longer walk as far as I could before, every joint hurts. I am struggling to stand up from sitting and I am stiff all day now. I was supposed to be seen this month but my next appointment is not until November. I am going to email my consultant as I have not seen her for ages. I hope things improve for you and me.

[Cathy777 in reply to ExAcc]

Hi just seen your post. I just started Yuflyma and having dreadful side effects. Dizziness and confusion plus full body aches. Have you any updates on your experience please?

[Beachwalk in reply to Cathy777]

Hi Cathy. I’ve not had your side effects, I have just started the injections and I have two so far. Best you speak to a nurse as not all injections suit everyone good luck

[Cathy777 in reply to Beachwalk]

Thanks yes I have spoken to nurse but she isn't very knowledgeable in my opinion! Seemed very unsure what I should do. I want to speak to the rheumatologist.

[ExAcc in reply to Cathy777]

Hi Cathy, I saw the specialist nurse earlier in the month and we have decided that I should not take the Yuflyma injections for the next 12 weeks and see whether my RA deteriorates. My hands and wrists are starting to hurt more often, the stiffness is still there but I feel so much better in myself more alert, less exhausted and a much more positive attitude. My sister even noticed just in a phone call that I appeared brighter. Not had Yuflyma for 5 weeks but still taking Methotrexate tablets. I think it just doesn't suit me but it is the cheapest biological and they are resisting trying me on another at the moment.

[Cathy777 in reply to ExAcc]

Thank you. I didn't realise it's the cheapest! I have been on methotrexate for years. Was hoping this would work but I don't think I can tolerate side effects. Feel much worse both with pain and generally feeling dizzy and confused