Hello everyone,
I haven't posted for a while, but have been reading the daily updates coming into my email account.
I'm not too good at the moment, lots going on that I won't bore you with, a quick summary:
After paying for MRIs which showed florid synovitis, bone erosions and more I was switched to Adalimumab...I've only had 2 injections, but so far no response...rather I've had to increase my daily oral prednisolone to be able to get out of bed.
I've now had 5 (confirmed by xray) and probably 7 spontaneous rib fractures over the past 3 months. I have been reviewed by the Prof. who still believes that I am on the correct treatment of Zoledronic Acid infusions.
Yesterday I was seen by my neurosurgeon who was a delight and spent a lot of time with me. My recent sacral / lumbar MRI (NHS) show further spinal occlusion, hence my increasing altered sensations, now in both legs, and my decreasing mobility. Fortunately the sciatic pain has not increased 🤞. Surgery is possible, but very high risk, and would do nothing to help my lumbar pain. I have more than a 50 % chance of being left worse off. We opted to leave further surgery for now. I'll be reviewed in one year.
I have also been diagnosed as pre diabetic, but managing diet / weight successfully for now.
My Adult Disability Payment (formerly PIP, changed only in Scotland) and blue badge are up for review and I have a small , but elusive water leak in my house.
Apart from the above, all is well 😂.
Seriously, mentally I'm surviving, had a long chat with my GP too and know that he is there, if I need help.
I hope you are all as well as you can be.