I had a Covid booster on Tuesday,it was Moderna.
I had Moderna last time,I was unwell for a few days.
Since Wednesday I’ve felt dizzy and unsteady,I’ve also ached +++.
It’s Saturday now and I only feel slightly better but I’m scared of falling over,I broke my hip last year.
So I’ve decided I’m not going to accept any more vaccines,I have enough bad days without having vaccine related bad days.
I hope everyone is ok x
Maybe have a chat with your rheumy or GP about your concerns? Hope you feel better soon. 🩷
I’ve decided not to have the Spring booster because after the last one I was really poorly, in bed for quite a few days with flu like symptoms. I’m steroid dependent so have to double my steroids for each day I’m too sick to get up.
I’m exately the same I’ve had enough of the symptom after effects that took almost 2 weeks to recover together with the terrible flare it 3.1/2 weeks later I’m still not weight go said I think it so it happens I don’t think so.
I feel same way having never really struggled much before with the other vaccines. This was my ninth and first Moderna and widespread bone pain and chill kept me immobile for 3 days afterwards - other strange symptoms too. I’m confused because an expert rheumatology prof I saw last year said that three had probably been enough to give me immunity as as I take a week off my immune suppressant and I’ve had nine C19 vaccines now. I know they update it to include new variants like with flu but surely comes a point where we CEV stop needing it twice yearly? I wish they could check our immune system first to see if I needed it as they do with other viruses etc prior to Rituximab. Moderna does seem go have a worse track record for side effects than others.
You can just a test to do a finger prick from bio-diagnostics on line. I do them twice a year. Around £35 cost. After boosters I go to 8 which is a high antibody count and it dwindled to 6 moderate after 6 months. I had another booster at the start of this month and it went back again to 8. My hubby is also 8 without boosters but he's had COVID twice. Me once for 2 days very mild. I thought being on Benepali the boosters may not work as good but it's made no difference for me. My antibodies still rise.
Hi, Can I ask which scale you are using to distinguish if your antibodies are low or high? The one I test with at home and the private clinic I used, use this attached. There is also another much more involved testing company called Biocard. I am going to use them for my next test but my last few antibodies results have been good. Biocard say they go into detailed results. Sometimes testing companies also give the result of 2,500+ and don’t give the actual numerical result. I had that too at a private clinic.
I found the Biocard results. They look to be the scale you refer to. Reason I asked is that 6 or 8 are very low on the other company results scales. Glad you have a good result! I shall use Biocard next home test (but prefer a private clinic as my fingers don’t give a great quantity of blood!)
Yes it's Bio-Card I use. The company is bio-diagnostics.
Thought so, by the results. I will use them next time if I need to do z hole test but I’ll probably go to the private clinic to have it done there.
I had my 7th vaccine last week and had my usual flare after it but not as bad. Moderna has been a much better one for me. I understand people saying they don't want it again and of course it is your choice. I personally will continue to have boosters as the thought of getting covid is a greater fear for me having lost a friend from it. I also think that if we don't continue to have boosters, covid will take hold again as more people will be passing it around without having had protection and that thought is very worrying. I wish you all the very best.
I’m pleased that the Moderna works well for you.
It's your choice to make. I'm sorry you feel rotten. I hope you are now feeling a lot better.
Thank you
Oshgosh, it seems this latest Moderna vaccine is causing more side effects . I was ill for four days this time including a much more painfull injection site. Don't blame you for not wanting to have any more , I was thinking that way too . It makes my arthritis worse as do some of the things like statins and BP tablets . We don't know or the researchers what effects the injection has when mixed with other drugs do we?, time will tell.
Thanks for your reply.
I thought I was imagining symptoms.my aches and pains have been worse,as have the nerve pains,you have reassured me that I’m not going mad.
Statins make me worse,even though the Professionals tell me they don’t.
It’s a bit irritating,I’m on the 3 rd different statin now,if I don’t tick it on the prescription they still send it.
I can’t understand why they expect me to take medication that makes me worse,
Life can be miserable enough without statins.
I take everything else including beta blockers/ blood pressure pills,one of them cause me to have uncontrollably cold hands..
Take care
Oshgosh there is only one way to test the theory thats to try and stop some tablets , but simpler still is to look at the reported side effects on patient leaflets , cough is another common one , I often report them to the yellow card deptment which is for patients as well as doctors. And you can tick a box for the details to be given to the Dr. Also one to ponder if all the tablets & injection cause a similar side effect then that side effect is going to be doubled, trebled or more. Actually making you ill , plus long term use can be the underlying cause of a new side effect. I had over 6 months between my covid injection but reaction was worse. Or maybe my body was reacting to all the drugs given in the last 6 months . Hope this helps you to decide where your priorities lie in decisions about your heath, plus as we get older doses should be reduced. Have a good day, Oh the dr at the hospital said he would rather I went home and took paracetamol. Does that cure cancer as that's my diagnosis, would be my question. ? Just have to keep praying for an old fashioned elixir that cures all 😅, before we do go mad bashing our head against the theory that there is a pill to make us better. Life is not endless but if ill it can be improved by certain changes. Have a good day the evidence shows a lot of pills cause minor side effects and it is difficult if you have different health issues. The decision to take pills or have operations still remains patient choice when fully informed.
Thanks for your reply , I know which drug is causing the cold fingers, it’s a blood pressure tablet and a beta blocker.
I’m scared to stop it I’m worried about another heart attack.
I had a cardiac check at the GP surgery,the practice nurse didn’t fill me with confidence.
She told me I’d put on a bit of weight 1 kg.
This made me feel instantly on edge- I have auto immune disease accompanied by lung fibrosis,this has led to loss of appetite over 5 years.
I’ve gone from a size 18-20 to 10.
I have input from the dietitian,they keep prescribing me ensure etc.
I didn’t tell her about my weight loss,just said that losing weight isn’t a problem I can easily lose weight,as I don’t want to eat.
So the check carried on,she said that the beta blocker didn’t cause cold fingers.
I mentioned that the lanzanznzaprole caused me to have hiccups,xcess mucus,again no constructive comment,she said that it was meant to cure the problems I was describing.( I knew this)
She couldn’t get blood,I had to go back to see the phlebotomist.
On the whole a very negative experience,as the practice nurse is the person I was directed to.i can’t see any point in dealing with her.
I’m sorry to seem negative,but the whole thing just defeats me,luckily I can use the nurse helplines for lung and rheumatology.apologies for moaning,
I’m going to go for a walk in the rain,it might wash away my perplexed mood.
I hope your day is ok. Xx
I appreciate how you feel, I often feel like that after talking to some medical staff. My pharmacist at the surgery says she loves talking to me as she is learning from me . I can't go walking like you as its too painful . They could not get blood from me one day either. Went for eyes they wanted to do my cataracts on Saturday hows that for speed. Fingers crossed it all goes well. Bye for now hope you enjoyed your walk and it cleared your head a bit. xx
I don’t walk very well.
It’s a Walker with the oxygen concentrator in the pocket.the fresh air does me good.am miserable this morning,dizziness has returned with a vengeance .
It’s strange,but the most helpful person I Speak to is the Interstital lung disease pharmacist at the hospital.
She is young,but listens better than the ones at the surgery.
I suppose you can’t win them all xx
Know the feeling , I can't get my walker down the steps , so its stick or crutches. Now the last visit to hospital confirms I have a serious lung problem and the suggestion is I walk every day incase I need more treatment to keep my lungs fit. As you say you can't win them all but I guess we have to keep trying. Have a nice weekend .
Had Moderna this time and have not felt well since. Pain and tears no more for me ,either
Have you reported your symptoms? I was much worse after this latest one and reported to GP. They said they’ve had a lot more calls this time round with symptoms lasting longer for more people.
I’m thinking of using the yellow card system
Yes I left a message for GP
Covid spring booster. I'm considering if I want another. That was Moderna and I don't remember feeling so ill from the other ones, but NHS get the cheapest.
Flu jab a few years ago left me stuck in an armchair for a couple of days. Recently I was given the last densoamab into my stomach, ( not the skin fold as advised on information leaflet as it should be sub cutaneous) Currently recovering from the sore stomach. Not had the same problem with the 1st Denosamab done in clinic.
I was hospitalised with Covid but my Husband, same cough etc was left at home as he's got Huntingtons disease, He has carers but this was worrying.
I want to have the boosters, I understand why they are needed, but the side effects are a bit scary. Will have to see if I am well enough at the time. Usually surgery nurse may phone, not much notice.
I feel as if I'm having a mild flare up of PMA or RA, hip ache when bring bags of delivered shopping in. Here we go again!!
I do think judgements are made mainly on cost not effectiveness, sometimes little regard to the human being. Staff are busy and just rush to complete the list of visits.
Keep on at the so called medical experts intil you get the information to make an informed choice. Hope things get better soon.
Good luck
cema
Positive follow-up rheumy appointment - but no more bananas for me
They will rebuild me !
Slightly off topic but relevant………
Latest Spring covid vaccine booster - was yours original or bivalent?
Why do I feel so unwell since starting treatment? Not sure I want to take more pills.
