Kevzara: Hi everyone! I have been dealing with PMR... - NRAS

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Kevzara

Gucita profile image
10 Replies

Hi everyone! I have been dealing with PMR since last July and have being on Prednisone since then. I started at 15 milligrams, I am down to 5 but I am having a hard time lowering the dose. I have tried Methotrexate with no luck. I am not on it anymore. I have a friend who is vegan (she even does not use any processed oils) who was telling me about this kind of diet for several years now. I see how well she is doing (she has had other health issues) so after being in so much pain lately (I was having a flare up) I decided to try that diet. I heard of a cardiologist story which also inspired me to try it, I only started it this past week and have not seen any results yet. I will post the links on the bottom if that is allow.

My doctor just suggested to try Kevzara which I am willing to try for a while and hoping that my new diet will work so I can be off medications soon. Has anyone have any thoughts or recommendations on Kevzara? Has anyone have any luck with it?

Thank you so much.

Peace,

Gucita

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Gucita
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10 Replies
AgedCrone profile image
AgedCrone

Unfortunately although a healthy diet is essential when dealing with any autoimmune disease it doesn’t replace medication.

You say you were only diagnosed in July……4 months ago….so you probably need to give it at least another 6 months before you will be able to get off Pred….but be prepared to accept that you will still need some meds.

It is not a good idea to make a goal of stopping medication ….most people do find accepting that very difficult…..but bluntly for most of us …to lead a pain free life some medication is vital

Do listen to your doctor….eat healthily by all means but no diet has yet be discovered that cures RA related symptoms.

Gucita profile image
Gucita in reply toAgedCrone

Thank you so much!

Gucita profile image
Gucita in reply toAgedCrone

FYI My symptoms started last July 2022

AgedCrone profile image
AgedCrone in reply toGucita

Not splitting hairs but in the UK last July was July 2023!

Gucita profile image
Gucita in reply toAgedCrone

Here are several links to interviews with doctors about the success of eating WFPB (Whole Food Plant Based) to alleviate rheumatoid arthritis pain:

Dr Monica Aggarwal, cardiologist: pcrm.org/news/exam-room-pod...

Dr Daniel Ganu: pcrm.org/news/exam-room-pod...

Dr Hana Kahleova, on research study: youtube.com/watch?v=fwV4lMs...

AgedCrone profile image
AgedCrone in reply toGucita

Don’t you think if any particular diet was really proven to work in reducing the need for people with RA from needing to take medication…..some health service/pharmaceutical company would have got a patent on that diet & made a fortune?

Sadly until some miracle occurs Disease Modifying Rheumatic Drugs & possibly Biologics are necessary to protect our joints & organs….& RA will continue to be regarded as incurable ….probably for a very long time.

davannh profile image
davannh

Hi

I think it is always tempting to think that a change of diet will improve/cure/eliminate Rheumatoid Arthritis. The reality is that whilst a healthy diet will help your general health it will not help your Rheumatoid. There are huge amounts of money spent on research into cures - if a simple diet changed the progress of the disease that would be a real breakthrough.

You do need to be careful that if you don’t take some form of medication you could damage your joints further (or the other organs that RA attacks) and cause even more issues going forward.

Gucita profile image
Gucita in reply todavannh

Thank you very much. Wishing you health

Gucita profile image
Gucita in reply todavannh

Here are several links to interviews with doctors about the success of eating WFPB (Whole Food Plant Based) to alleviate rheumatoid arthritis pain:

Dr Monica Aggarwal, cardiologist: pcrm.org/news/exam-room-pod...

Dr Daniel Ganu: pcrm.org/news/exam-room-pod...

Dr Hana Kahleova, on research study: youtube.com/watch?v=fwV4lMs...

smilelines profile image
smilelines

I think I remember that PMR can go away in time while RA and PSA don’t. I hope you get better! I actually believe that anyone who gets better from a change in diet was misdiagnosed and never had an inflammatory arthritis in the first place. I know I was originally diagnosed by my family doctor with PMR but this was changed to RA then PSA. Best.

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