Low folic acid .: Has anyone on methotrexate had a... - NRAS

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Low folic acid .

Grounsel profile image
10 Replies

Has anyone on methotrexate had a problem with low folic acid in bloods?

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Grounsel
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Esmereld profile image
Esmereld

yes. Ooh, I had palpitations, anxiety, hair loss and manky nails. Honestly thought I was very sick.

Was put on 5 mg for 6 days a week. Hair stopped falling out, all symptoms disappeared and I eventually found my happy medium at 5 mg every other day. I don’t fret if I forget to take it.

Grounsel profile image
Grounsel in reply toEsmereld

I have the manky nails , the anxiety and mouth ulcers . Only on 1 5mg tablet once a week must not be enough . Thanks for putting my mind at rest .😀

ABwn profile image
ABwn

Put on folic one a day, apart from the day i take methotrexate. Have kept hair!! Been on it since a started taking mtx. No problems.

vonniesims profile image
vonniesims in reply toABwn

Me too

Grounsel profile image
Grounsel in reply toABwn

I'm on 1 folic acid a week ,must not be enough hairs ok nails , mouth ulcers and really tired . Hope they sort it out soon .

LippyLu profile image
LippyLu

I’ve read that Methylfolate is the best form to take it in. I take 5 mg every day except MTX-dosing day (once a week). It’s important to have the right level to help protect your liver from damage.

Grounsel profile image
Grounsel in reply toLippyLu

I'm just on 5mgs folic acid once a week . It has been enough for quite a while but it must need increased now . Thanks for reply 🙂

Sebastian247 profile image
Sebastian247 in reply toGrounsel

I started on 5mg folic a week as well. The MTX made me feel really unwell (20mg a week orally) so I asked the nurse to increase the folic acid and am on 5mg 6 days a week now. I've been much better since.

It's worth a try. Cheers.

Seb

Grounsel profile image
Grounsel in reply toSebastian247

Thanks for your advice I got more blood took yesterday so hopefully get it sorted when results come back 😀

Cien profile image
Cien

I take Folic Acid 5mg and Methotrazate 10 mg per week. My blood test showed the folic level was too high so the Folic acid was stoped for 3 months and now restart the Folic acid 5mg a week. No obvious symptoms were presented when the folic level was too high or normal.

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