Sore eyes: Has anyone had problems with their eyes? The... - NRAS

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Sore eyes

Brian1977 profile image
43 Replies

Has anyone had problems with their eyes? The last couple of weeks I've been getting really bad blurred vision and it's rather painful. I don't know if I'm getting paranoid or what. Fed up with this whole inflammation malarkey now just goes from one place to the next I always seem to be moaning 🙄

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Brian1977 profile image
Brian1977
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43 Replies
KittyJ profile image
KittyJ

have you seen an optician? If not then I’d go and get checked out.

Brian1977 profile image
Brian1977 in reply to KittyJ

I've not yet but seems to be getting worse so I think I best go get an appointment

KittyJ profile image
KittyJ in reply to Brian1977

definitely give them a call today. Better safe than sorry.

Summerrain14 profile image
Summerrain14

Hi Brian. Have you had your eyes checked at your optician recently? I would make an appointment and explain you have RA as there are a few things that can cause painful eyes with blurred vision related to having RA.

Brian1977 profile image
Brian1977 in reply to Summerrain14

I hate pestering people incase it's nothing but seems to be getting worse so I'll ring up today

Summerrain14 profile image
Summerrain14 in reply to Brian1977

You are never pestering people at all Brian. I always say to my patients who say this to me that they are keeping me in a job and out of mischief. Please do get an appointment with your optician and mention you have RA and that your vision is blurred and you have painful eyes won’t you. I know what you mean about not wanting to pester people as I am just as bad. Recently I had very painful eyes and my own eye hospital where I work were telling me off nicely for not asking them to take a look. I am now a patient under them.

Brian1977 profile image
Brian1977 in reply to Summerrain14

Thankyou 💗

Jackie1947 profile image
Jackie1947

Hay fever causes sore eyes. Also a condition called dry eye .

Brian1977 profile image
Brian1977 in reply to Jackie1947

It's crazy I've never suffered from anything ever until I got diagnosed with pancolitis 2 years ago and now the inflammation has spread everywhere even in my sacroiliac joints now bloody crazy

Jackie1947 profile image
Jackie1947 in reply to Brian1977

Best to get your eyes checked out.

woodstar1 profile image
woodstar1 in reply to Brian1977

I was the same, I'm 53 and never had hay fever until 3 year's ago!! Try an over the counter antihistamine, works for me no more sore eyes. 👍🏼

MJSlide1958 profile image
MJSlide1958 in reply to woodstar1

Good idea, is it ok to take antihistamine with Biologic and MTX?

woodstar1 profile image
woodstar1 in reply to MJSlide1958

I'm not a Dr but I know lots of people that do. Maybe give the nurse a quick call to confirm it's ok. Hopefully you can get some relief 👍🏼

MJSlide1958 profile image
MJSlide1958 in reply to woodstar1

Yes, thanks

AgedCrone profile image
AgedCrone

This time of year it could be connected to Hayfever….I ended up back in my Covid mask yesterday with sore eyes,& coughing & spluttering in my garden when the lawn was being cut… but do mention it to your Rheumy nurse if you have one…,any vision problems especially if they are painful should be treated seriously so try having a word with your optician too.

Brian1977 profile image
Brian1977 in reply to AgedCrone

I need to go get my meds today so I'll nip in and see if I can get an appointment

AgedCrone profile image
AgedCrone in reply to Brian1977

Emphasize the blurred vision!

dippyd09 profile image
dippyd09

I think with your eyes you can’t be too careful, I would make an appointment with the optician. They can diagnose problems and prescribe something if necessary. I would it as soon as you can.

Stoli72 profile image
Stoli72

Hi Brian, I have secondary Sjögren’s syndrome (secondary to my RA), with very dry eyes being a feature. My RA medication helps to some extent but I am constantly putting drops, gel and so on to help. Definitely worth checking with an optician. Emma

Brian1977 profile image
Brian1977

I've managed to get an emergency appointment for tomorrow thankyou guys

Fruitandnutcase profile image
Fruitandnutcase

You’re not by any chance taking hydroxychloroquine are you? In which case if you are have your eyes seen asap. Hydroxy can cause irreversible damage to your eyes if you carry on taking it like that.

Reeceregan profile image
Reeceregan in reply to Fruitandnutcase

Can vouch for that 🥴😎

Reeceregan profile image
Reeceregan in reply to Reeceregan

I see my eye specialist 6 monthly for checks for what he calls Plaquenil induced macula degeneration. If I go off the Plaquenil I no longer have to see him. At this stage I have blurred vision but it’s not MD …yet. Be careful with your whole body and organs if you have RA.

Lex54 profile image
Lex54 in reply to Fruitandnutcase

I'm on Hydroxychloriquine and provided you are on the correct dose unlike years ago your eyes should be fine. I have mine checked every 6 months and also use eye drops occasionally for dry eyes. It's toxic to retina if dose too high but doesn't cause macular degeneration as far as I'm aware . Not had a problem with Hydroxychloriquine.

Brian1977 profile image
Brian1977 in reply to Fruitandnutcase

I'm not no just on amgevita and methotrexate

calflo profile image
calflo

Hi Brian I would go and see an optician I was diagnosed with dry eyes (blurred vision) brought on by RA

Brian1977 profile image
Brian1977 in reply to calflo

I've managed to get an appointment today so fingers crossed 🤞

Lex54 profile image
Lex54

Hi Yes I get blurred vision often but attend opticians regularly as she prescribed me eye drops for this. Basic eye drops to moisten your eyes. Dry eyes is a side effect of the medication and inflammation. I would visit the optician. Mine is much better now . Good luck.

Brian1977 profile image
Brian1977 in reply to Lex54

Thankyou will let yous know how I get on

Gilliancheche profile image
Gilliancheche

See an optician or doctor. I have immune issues affecting my eyes. Am under the hospital and using loads of different drops, including steroids! It might just be hayfever, but get checked by a professional

Bedwell profile image
Bedwell

thought blurred vision was a symptom of steroids anyway. I certainly have that ! Not sore.. but def blurry. Maybe I’m in the wrong section.. had eyes tested . Said blethaitis or something like that!!! !!! Thought I was on pmr section. Sorry!

cyberbarn profile image
cyberbarn

There is something called Multiple autoimmune syndrome where people often have three different autoimmune conditions, often Hashimoto's, Sjögren’s and RA. In fact there has been research that shows that Hashimoto's should be treated like an autoimmune condition just as RA and the others are.

I had Hashie's first, then the PsA was diagnosed, but my rheumatologist refuses to take the dry eyes and mouth seriously so nothing goes in my records to say I may have Sjögren's as well. This is a big problem when it comes to research as clinicians won't realise that if someone has one autoimmune condition they should be checking for others too. And patients need to speak up and not blame themselves or the weather.

madme1 profile image
madme1 in reply to cyberbarn

Yes I've had that problem, with GPS not acknowledging the dry and blurry dry eyes. It's so frustrating. Also have problems with my sinuses as well.

Green230461 profile image
Green230461

I had this issue mine was linked to RA inflammation!pressure at the back of my eye. Saw my friendly ophthalmologist who sent me directly to hospital where they did tests and gave me eye drops which I take daily.

All sorted !

Don’t wait about with eyes they are precious and go wrong quickly so get help 😍

madme1 profile image
madme1

I have that Brian and have to use drops, ra affects the muscles of the eye as it does all our muscles. Drops do offer some relief and it seems to be all my gp can offer.

RA64 profile image
RA64 in reply to madme1

I have a condtion that effects the eye muscles and am being referred to a neurologist.

Brian1977 profile image
Brian1977

Hi guys I've just been to the opticians the front of my eyes are really dry. They said it could be the amgevita causing the dryness. I've got drops to see if it helps and another appointment in 2 weeks thanks for all the lovely replies

KittyJ profile image
KittyJ in reply to Brian1977

Glad you’ve got some treatment to try, fingers crossed it helps.

Vixen2 profile image
Vixen2

I have RA, Uveitis & Galaucoma. Uveitis can sometimes come with RA as a package deal. It’s inflammation of the eyes. (Iritis). If you live in London. You should try & get on Moorfields eye hospital books. The staff are fantastic. I’ve been going there 30yrs. I’ve had loads of steroid injections in my eyes & loads of other procedures. It’s very important that you get your eyes looked at. Good luck.

heartgirlx4 profile image
heartgirlx4

I had my cataracts done at Spa medica in Bolton, about 2 years ago now, in the last few months my left eye is very blurry, I'm going back to spa medica on the 30th for a review I just hope the sort it ASAP as it seems to be getting worse my left eye Hope you can get sorted soon brian

Take care

Koroush profile image
Koroush

Yes my right eye , Since I was on Hydroxychloroquine (one side effect is vision )

my RA helping team stated to go to optician let them know my disease (RA) and medication

its important to get a good optician and a good examination

KASHMIRI1 profile image
KASHMIRI1

I have had a problem with dry painful eyes and hay fever. The high pollen count this year hasn't helped. I was also diagnosed with dry eyes by the

KASHMIRI1 profile image
KASHMIRI1

Sorry message went to soon. The optician and the hospital emergency eye clinic diagnosed dry eyes l have drops for it which help greatly. As long as l remember to take them as well as all the other pills!!.

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