Without more detail, it is hard to say if this is similar to my experience but I will say I am far more likely to believe the specialist opinion of an ENT consultant than that of your General Practitioner. Is it really likely that the swabs are wrong? All of them?
I can say I have had mouth and throat infections related to a previous RA treatment, which I reported to my RA team and it was one of the factors that resulted in a change of treatment.
What does your prescribing specialist team say?
I would caution against stopping treatment without a backup plan or option but I accept it depends on how intolerable this is becoming.
However, always remember you are the expert on you. Assert your opinion and good luck
Hi, I have reported to RA team but they will not change my meds. I am pretty sure it's mtx that's causing the problems. did they take you off mtx and put you on something else ?
how did you manage to get it changed?. my RA team say my das score is only medium and not enough to get biologics. I don't know enough about the other dmards.
It does sound like it is the MTX. When I has an issue it was with a different treatment but these are all affecting your immune system and can have similar effects, though it is not guaranteed to happen.
I would suggest you are careful not to under report pain etc when a Das score is being done. I was guilty of that but it gives a false picture. Also, the support and opinion of the ENT consultant will help. I do not know how much this affects you but you need to say how much it may be affecting your quality of life, destroying your confidence etc. It is a pity but it looks like you will have to build a case for a change. It would really help if your GP supported you in this and requested a change too.
I hope you can reach a good outcome. We do not need these things on top of the disease.
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