cold feet!

[Sjhoney]

Hi all!

I have been having a strange cold sensations on the sole of my right foot. At first I thought I had a hole in my boot as it felt like cold water! Has anyone else had a similar thing? Is it just another weird RA symptom 🥴

Ta, Sarah x

[rabbits65]

well I’m not sure if it’s similar to you but lately I have been having circulation problems in my hands and feet. I have some sort of perepharal neuropathy in my feet…. It’s most odd and a bit scary . Your not alone with these weird happenings.

[Sjhoney in reply to rabbits65]

Hi, yes it’s such an odd feeling! RA just keeps on giving 🥴😄

[Rachmaninov2]

Maybe you could make an appointment with your GP, just to put your mind at ease.

[SpaghettiIsGood]

I've never experienced that personally

[Sheila_G]

Hi. My hands and feet are alwaya cold except in bed when my feet and legs ache and are very hot. I haven't had exactly what you have experienced but after almost 21 years with RA I still don't know what's coming next. It's always best to ask rheumy as he/she may be able to help if not consult GP.

[Leics]

I’ve definitely noticed since having Covid for the first time in January that my hands and feet are like ice. The first symptom of the virus was that I couldn’t warm them up and the flare that I’m still experiencing as a result isn’t helping. I’ve also had awful chill blanes this winter and I haven’t had those since I was a child. So yeah same for me. Perhaps best to let your rheumy and or GP know if you’re concerned.

[Mmrr]

Yes, I get very cold feet, patchy at times and very difficult to warm up.

[Hidden]

Cosy socks are a must, even if I’m not wearing anything else 🤣.

[Ascidian]

A few years before I was diagnosed (with PsA) I had a spell when I experienced similar sensations. In my case, it was predominantly the sensation of fluids running down the backs of my legs - very disconcerting, especially since I was close to the menopause and my periods were awful at the time. For a while, I also experienced tingling in my arms and legs. I was referred to a neurologist (don't panic, just read the rest) as there is a family history of multiple sclerosis. By the time I saw him, all my symptoms had stopped. However, he did all the tests and an MRI and found nothing other than some degeneration in my lumbar spine and in my cervical spine. He sent the scans off to a spine specialist as he thought the cervical damage might be responsible. (I had, in fact, experienced quite a bit of pain and stiffness in my neck at about that time). The verdict was that the damage wasn't sufficient to cause my symptoms.

Now that I have the inflammatory arthritis diagnosis, I strongly suspect that I'd unwittingly had an arthritis flare and THAT had caused the neck pain, and that the inflammation had put pressure on nerves, causing the strange sensations.

So, if the sensations continue, please see your GP as he may wish to refer you to neurology. But it is entirely possible that it might be caused by inflammation, somewhere which affects your nerves. Hope it all resolves itself for you xx

[Sjhoney in reply to Ascidian]

Hi, thanks for your advice. It’s not so much feeling cold it’s more like a weird sensation of feeling like there’s water in my shoe. Not sure that makes sense but it’s the best way I can describe it 🥴

[kennethb]

It could be the onset of peripheral neuropathy. Do you have any tingling in your toes or flashes of pain in the soles of your feet? Is just one foot or both?

You should raise this matter with your Doctor without delay. It may be something trivial but you need to investigate.

[Jumbo2012]

Check with rummy but I have the same and am told its a form of raynaulds syndrome and common in ra patients. I also have had awful chilblains this year. The advice I was given is .Put conditioner on your feet, wear 2 pairs of socks rather than 1 thick one same with gloves, 2 thin pairs. Always warm hands and feet slowly. Hope this helps

[annjoy]

I have been having problems with my feet in the night for some time, mostly so burning hot I can't sleep, even though I put a cold pad in the bed or wander round the house with bare feet to try and cool down. However, at other times my feet and calves are so cold they are very painful. I was given Gabapentin which helped a bit initially, but it's become so bad I spoke to a gp yesterday who prescribed Amitriptyline 10mg but the side effects are horrible, so I'm loathe to take them. Does anyone else have experience of these?

[oldtimer2]

I get this from nerve root pressure in my lower spine - I have spinal stenosis. I was told originally that it was peripheral neuritis, but after an MRI on my spine, they changed the diagnosis. Not that it matters, no treatment is suggested.

[Alicex]

It could be linked to immuno illnessess. My neice has ME and had the feeling that her foot was wet. I have RA and have had the same feeling although later I developed parasthesia which is the feeling of tingling , numbness etc . I don't what caused it but I am presently taking low dose steroids for RA and that helps.