Finally…: after having the most debilitating flare ever... - NRAS

NRAS

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Finally…

TheBoys profile image
18 Replies

after having the most debilitating flare ever where I ve literally thought about giving up at times; I saw the rheumatologist yesterday and got a welcoming steroid shot which has given me back my life today and I ll start on biologics in the next month. Hopefully this will work better than the DMARD therapies.

Onwards and Upwards.

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TheBoys profile image
TheBoys
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18 Replies
Madmusiclover profile image
Madmusiclover

good news. Everything crossed.

Gnarli profile image
Gnarli

Well, that's probably the best news I've heard in too long. I'm so glad for you and, touch wood, hope your new med is 'the one' for you.

Vixen2 profile image
Vixen2

Hey. I know that feeling. I’ve had the most awful flare ups. I’ve been in agony in every single joint. Had to go to bloody a&e. I had 1 awful flare. Rang 999. They wouldn’t send an ambulance. Had to ring non emerg. They sent me 1. Had an awful 7 hr wait in a really draughty a&e. I felt so ill & just didn’t feel human. Exhausted & in total agony. But once i was given a steroid shot & steroids to go home. A kind guy helped me into a cab & the lovely cabbie helped me out. I was so grateful. I got into my flat. Limped over to the kettle. Zapped my soup in the micro. Pulled my duvet back. Turned my tablet on. Got into my lovely warm bed. Put a comedy on & i felt like i’d won the lottery. Once you’ve been given medication & you meet kind people along the way. Little things can really make life worth living! Good luck x

TheBoys profile image
TheBoys in reply toVixen2

that’s how I feel. Being pain free tonight is beautiful. I was at my lowest ebb last week. But tonight’s been great.

Vixen2 profile image
Vixen2 in reply toTheBoys

i’m so glad. It’s unbelieveable how great steroids & painkillers can be. I was on quite a high dose. I’ve had to have steroid injections in my eyes over the yrs. I had another Iritis flare up & wasn’t in the mood for the needle. So i had to go on steroid tablets for a few months. I became moon faced. Awful. My eyes bulged like frogs eyes. My face & neck puffed up. I looked awful. I’d rather have discomfort for a few mins than look like an alien for a couple of months!!! Enjoy your freedom from pain!!!

TheBoys profile image
TheBoys in reply toVixen2

many thanks for that. If I can get a respite for a while, I’ll be mega happy x

Mama-K profile image
Mama-K

so glad you are feeling a little better. I am newly diagnosed RA & had a steroid pulse IV. Certainly helped my pain. I’ll be interested to hear how you get on with the biologics x

janmary profile image
janmary

good news - onward and upward

Deeb1764 profile image
Deeb1764

YAY bet you are feeling so much better today having that shot and can move forward and start enjoying your days x

helenlw7 profile image
helenlw7

This is such good news.

Happy5 profile image
Happy5

Know the feeling the relief is life saving init? 🤗

oldtimer2 profile image
oldtimer2

That sounds a better solution - best of luck with your first biological treatment. Do you have to have lots of extra tests before starting? - I know I did, like for exclusion of latent TB etc and that delayed the start a bit. But, for me, it has been a transformation of my previous condition and made life much more comfortable and enjoyable.

TheBoys profile image
TheBoys in reply tooldtimer2

hi sorry for delay but yep have had all the tests and good to go with my first delivery of Amgevita (Humira) on the way

Blackberrywine profile image
Blackberrywine

So pleased to hear that. 😊

TheBoys profile image
TheBoys

have had a lovely pain and swelling free today.

Doing my bloods tomorrow.

Thanks everyone xxx

Helen-NRAS profile image
Helen-NRASModerator

If you would like support, information or just someone to talk to, our NRAS helpline is open every weekday from 9.30am to 4.30pm nras.org.uk/helpline/ 0800 298 7650. Kind regards.

TheBoys profile image
TheBoys in reply toHelen-NRAS

thanks Helen. I will do that. I drive my family mad with my constant moaning and talking about health matters.

Ruth12345 profile image
Ruth12345

Pleased to read this. Happy days.🌻

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