I come on here sometimes to have a good moan. I’ve had RA since i was 21. (30 yrs). Plus Iritis & Glaucoma.
I’ve had an awful time the last month. First i had a very painful flare of my Iritis. Deep throbbing, burning, aching in my right eye, very bad vision. Had to go to Moorfields a&e. Went at about 10pm on a Sunday night. Was told ‘yes. I have Iritis’. Told to go on hrly steroid eye drops & to go back to a&e the next Fri. Was given a steroid injection in the eye. The injection was fine. But the abaesthetic drops were awful. Felt i was choking after. Nearly had panic attacks. Sat in the waiting area with loads of water & a banana. Then left after 2 hrs. I was so nervous. Had a big eyepatch on. It was so hot & i felt very dizzy. I felt so vulnerable. A lovely ‘guardian angel’ guy came & walked me to my bus stop. I felt so emotional. Very grateful he’d helped me.
Then about a week later, i developed a urinary tract infection. Felt very ill. My right kidney started to cause problems too. Of course it happened at the sodding weekend. No pharmacies open. (Eventhough i live in Central London). Couldn’t face a&e. So on Mon morn. A gp wrote me up some antibiotics over the phone. I went to the surgery & gave a urine test. They said i had E Coli. Took the antibiotics. Then i started having severe pain in my left shoulder. I was diagnosed with Bursitis in that arm last yr. this flare up was total agony. I went to UCH a&e on the 8th of Aug. Was there from 17.30-00.30. 7 bloody hrs. They did xrays, blood tests & urine. Told me i still had the infection. Gave me some antibiotics introvenisley. Plus morphine & codeine for the pain.
I’ve had serious pain over the yrs with this sodding RA. I’m sure everyone has on here.
But last night. I called my gp surgery. Spoke to an onduty dr. She told me not to go to a&e. That she didn’t think it was my kidney & to take my NSAIDs regularly & see my gp today. I’m so annoyed she put me off a&e. I had one of the worst nights of my life. DEEP DEEP SHARP SPASMS in the right side of my back.They felt like i was wired up to the mains. Electric shocks everytime i moved. I was crying. Tried to stop, as the pain was unbearable. I live alone. So i felt very depressed & helpless. From about midnight until 1.30am i coukdn’t get out of bed. I was scared. I couldn’t even reach my painkillers. I suddenly thought of brilliant utube. Looked up how to get out of bed with severe back pain. Saw a good vid. Told you to put a pillow between your knees & a cushion under you. Then roll. Worked wonders. Then i rolled over & got my strongest painkillers. I can’t explain the relief when i just got to the sitting position. I was elated. Waited for them to work. Then slowly made a lovely cuppa! & a couple of naughty choc digestives.
Today i’m going to try & have my 6 weekly infusion. Or see my gp. The relief to be able to walk again. Still having spasms. But nowhere nearly as bad.
Sorry to waffle on. I always write a novel.
Hope everyone has as much of a pain free day as they can! X