First Rituximab infusion today : ) was not as bad as ... - NRAS

NRAS
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First Rituximab infusion today : ) was not as bad as i expected........

Today went well, i got there early at 8am so i was seen to first, the nurse that looked after me was lovely and made me feel very comftable. She fully explained what was going to happen. I had a nice chat with the ladies that arrived on the ward. The lady next to me runs a dance college and lives in the same area as me, she is a remarkable lady she was having her 2nd infusion and only had posotive things to say which is nice. Time flew by and i managed to have a little nap!

During my treatment i had a temp and my heart rate was up so they kept an eye on me and i also had a very tickley throat i was given streoid to help prevent a further reaction which worked. It was not as i expected it to be. Thank u to everyone who has replied to my question i will let u know how i feel soon.

This time 4 years ago i was in labour and only hours away from giving birth on the 29th . And even tho my preganancy was a result in getting RA i would not change a thing we are all happy and healthy(well sort of)!! So i would like to wish my beautiful daughter Ava-Grace HAPPY 1st & 4th BIRTHDAY for tommorow mummy and daddy love u so much.

She is the best thing that has ever happend to me. I just hope this rituximab does me the world of good so i can play no stop with her without being so tired!

All my love

Gwen! xx

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Really pleased that it went well. Get a good nights sleep & hope you start feeling better quickly. Polly

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Glad to hear that all went well. Love your daughters name,my daughter is called grace,but i like the your name. I also had a cesaraian with my grace.

Hope you are still well this morning.

Love sylvi.xx

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Hi Gwen

really pleased that your infusion seemed to go well. I hope it works for you.

Happy birthday Ava-Grace

Sci x

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Glad it went well, you did it!!!!

And happy Birthday to the girls

Try to get some rest though or you will be exhausted for the big day !!

Axx

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Dear Gwen, I'm so pleased you managed so well with part one of your first cycle of Rituximab. The second infusion in 2 weeks time should go even better! I had my first cycle of Rituximab in Sept/Oct and although I had a few problems, having it administered slowly really helped. It's now been 4 months and my bloods are improving and my mobility is certainly starting to improve. It took a few months, after the steroid done with the infusion wore off, to start to feel any benefit and other than feeling flushed at times I have been fine. I have even reduced my pain killers & my steroids to just 2 mg day. I am back for assessment at the end of April and have already been told I will be getting another cycle but not before 6 months is up. Having tried and failed so many other drugs including anti-tnf Cimzia I am really really positive about Rituximab and hope it works for you also. Best of luck in 2 weeks but remember to not overdo it as your body needs to rest to get used to the changes it's dealing with.

Love Sue x

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So pleased it went well and happy birthday to your little girl leap year baby! x

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Thank u everyone for your kind messages my little girl has had a lovely birthday and been very spoilt!! i have been feeling tired and had a sore throat. I gonna try and be posotive about this treatment. Cant thank u all enough for your support.

Gwen xxxx

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