MTX and mouth blister

[Gottaloveastaffy]

Hey guys hope you’re all doing ok

I’m not feeling constant sadness after the passing of my beloved Charlie but have had infection after infection

I’ve now got a really sore mouth like when you burn it with hot food and the skin peels

Anyone else have this on MTX and Hydroxy ?

Ooh yeah ! Been following a thing on fb call spoonie something and it makes me laugh but is spot on il get the li I and post it because it highlights things like it’s taken me so many spoons to get ready for work but then comments all round it say we’ll you look fine etc

Anyway let me know about the mouth thing x

Thanks as always for everyone’s support

Xx

[Flipper12345yellow]

Hi,Yes I have blisters on tongue morning after methx and really sore mouth.

Every week is the same, soon as its about healed it's time to take another dose.

Can't find a solution.

Take care

[Gottaloveastaffy in reply to Flipper12345yellow]

Oh ok x so just normal then ? It’s only really started this week and my tongue feels a bit thick but it’s the inside of my lips they feel huge and that peely skin makes themFeel really sore x if it’s

Pretty normal

I’ll

Keep on with the vonjela xx thank you 😊

[Flipper12345yellow in reply to Gottaloveastaffy]

Yes, sometimes skin on gums peel as well as lips, really sore.I find salt water less painful than bonjela but tbh nothing stops soreness.

Sorry can't say anything more positive

[Gottaloveastaffy in reply to Flipper12345yellow]

Thank you ! Yes I sometimes feel like something is on my gums like just above my teeth x. Oh my gosh I am literally falling apart xx thanks for your help x

[Hidden]

I get this but not from medication but from silent reflux I use to wake with it in the morning until medication sorted it out.

[Gottaloveastaffy in reply to Hidden]

I have lamprozolw for a refluxThing do you think May ne related to that ? It’s a flipping nightmare lol one thing after another xx

[Hidden in reply to Gottaloveastaffy]

I too was on lamprozole but now on esomprazole and I have peptic ( like gavisgon but better) after meals and before bed. I have 2 pillows so sleeping on an incline.

Is your mouth worse when you wake up? If it is then a strong possibility it’s acid related x

[Gottaloveastaffy]

Thanks I willHave to keep an eye on it as have noticed it recently but this evening cos it was peeling and sore I was bothered xx thanks chick for letting me know x

[Runrig01]

Mouth ulcers are a known side effect of methotrexate. You can purchase low dose hydrocortisone tablets that dissolve on the area reducing swelling and pain. I had a friend who got them so bad suddenly after years of using them. She had to switch to lefuonimide.

[Madmusiclover]

I had bad mouth ulcers on metho. But I would say it’s worth getting in touch with rheumy for what your describe. X

[Wobbies]

Folic acid 6 days per week sorted mine out thankfully.

[oldtimer2]

I had considerable problems with large ulcers and sore mouth (and D&V) while on methotrexate even after changing to injections. The dentist encouraged me to ask for an alternative and they cleared up (together with some other problems which I hadn't realised were associated). But it's a marvellous drug for so many people that I don't want to put you off, it just didn't suit me.

I used to put Orobase (a gel available over the counter) on the inside of my mouth and kept it all very clean with tooth cleaning and mouthwash to help with the pain.

[Stowe]

Yes there not pleasant are they, I seem to get them on the inside of my lower lip, thankfully there not too big, but they do seem to be there regularly ☹ hope yours ease up.

[Garnacha]

I saw a post on here very similar months ago & someone commented that liquorice pellets worked, I was having terrible ulcers on my gums, lips, inside of mouth etc & thought I'd try them, first sign of an ulcer I have one & try to get it to stay over the ulcer, it worked 😀 but I don't think you can have liquorice if you're on prednisolone, the ones I bought were from amazon called barkleys, they've lasted me months & rarely get ulcers now x

[Hidden in reply to Garnacha]

I use these too . Work a treat

[Happy5]

When I was first on MTX often got them. Not had them recently no idea why?