Hi Peeps,
Hope you're feeling relaxed this Sunday morning?
I just wanted to put a positive comment on here about Tocilizumab. My inflammation markers: ESR and CRP have been within 'normal' range for the last couple of monthly blood tests! 🥳I have been on Tocilizumab since January and it seems to be doing it's job so far! 🤞
Great to hear . Long may it last 🤗
We all know how these things go, so I'm just making the most of it by walking to build my strength up and swimming etc. It's been a long time since my feet have been ok. I'm not saying I'm pain-free, because damage has been done, but I'm taking a holiday from extreme, continuous all over pain.
That's great Moomin, I hope it continues to be so for you. 🤞
👍So pleased for you…..& thank you for taking the time to tell us your good news, very encouraging!
Awesome 👌 Nice to hear x
So glad, it changed my life too ! One word re bloods as told to me by biologic nurse, your bloods will look normal due to tcz but if you have pain you could be in a flare x
Ah, OK - thanks for that top tip 👍
I didn't know my biologics nurse told me !
Really? What did they mean by that?
She's said your bloods appear controlled like they do on steroids but you may have a hidden flare , which from my das score I dud
Oh 😒How on earth are we supposed to understand all of this? So what did she do?
Just following their advice she new from clinical examination I was uncomfortable so in a flare but if your not uncomfortable and DAS is good snd bloods are good it's obviously working and extremely good news. What I was trying to say was if you are in pain yhey will still treat, does that make more sense?
Yes, absolutely - thanks 😊
So glad to hear it's working for you and if your pain is much less as well as your bloods for ESR and CRP that's really great news. If you're walking and swimming it certainly sounds as if it is. I know what allanah means though. My bloods were perfect when I was on Tocilizumab but the pain never left me. In addition all my muscles everywhere ached and I could hardly do anything. So I was taken off it and within a couple of weeks the muscle aches subsided. It's just something to be aware of and I know lots of people do really well on it just like you.
Thanks for this. My husband has just started Tocilzumab last month and so far has no reflief from pain. Waiting to see what the blood tests show. So disappointing, but he did find out it can take a while to have good effects. Hoping it helps after next infusion. xx
Mine did kick in well after no 2 but they do say after 12xweeks, fingers crossed x
Good morning Moomin8 ☀️ That's excellent news 🙌!! Very pleased to hear Tocilizumab is doing its job and I hope it lasts forever!! Thank you for sharing your good news and all the best, Christine
Thank you 😊 I just think that it's important to share positive news sometimes.
Thank you for sharing this good news. I am about to start this medication. It is good that you have a positive result.
I wish you the best - hopefully it will be good for you 🤞
This is just brilliant news and hope it continues for you. Thanks for sharing this encouraging news!
Very good news, it's wonderful when things work well and you feel you can get on with your life a little easier.
Thats great news. Thank you for sharing positive news. 😊 all the best. And just enjoy
Hello, amazing! Just wanted to say hello, I also started in January and I’m so relieved it’s working 😊
Great news💐
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