Off topic: F2F: Had my first rheummy f2f in 18 months... - NRAS

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Off topic: F2F

Green230461 profile image
42 Replies

Had my first rheummy f2f in 18 months on Friday. New male nurse CNS trained at Guys and now in our hospital. Took time to check my joints gave advice about tooth implants and even asked how long I had had teenage spots? Said it was possible caused by RA! Gave me cream for my face. I almost cried I was so overwhelmed that I was being listened too. How much I have missed seeing a medical professional - even though I hate going!

More bloods done and paperwork for the next two hurrah!

Have a good weekend everyone💐

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Green230461 profile image
Green230461
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42 Replies
sylvi profile image
sylvi

You lucky l;ady, which hospital was that darling. xxxx

Green230461 profile image
Green230461 in reply tosylvi

Broomfield. They were really kind on Friday and genuinely pleased to see everyone!

Matilda_1922 profile image
Matilda_1922 in reply toGreen230461

I may ask my GP to refer me to Broomfield. Sound much better than Southend. Hadnt seen anyone for almost 3 years. It was a let down just don’t listen to you at all.

Green230461 profile image
Green230461 in reply toMatilda_1922

Broomfield have been great with me. I had serious problems with my shoulder and Mr Lawrence did a full replacement followed by fortnightly physio for six months. Had issues with meds swapped three times then straight to humira. Then upped again to biologics. Also had support from ophthalmic dept because of linked eye issues. I really can’t fault them I have been very lucky. They are terrific so yes get yourself swapped over! I think that Southend is now part of the mid Essex group. 💐

Wobbies profile image
Wobbies in reply toGreen230461

Wow, my sister is under Broomfield and they have been awful. She is in severe pain and effectively ignored. Better tell her to keep badgering. Also, I had to seek another rheumy as the Broomfield one told me I was imaging it! So, they must have had started on the path to enlightenment.

Green230461 profile image
Green230461 in reply toWobbies

Sorry to hear that! Get yourself to this Glaswegian gem

Wobbies profile image
Wobbies in reply toGreen230461

Will definitely tell my sister. My rheumy is lovely though so I will stick with him, although I have to go to Cambridge.

Neonkittie17 profile image
Neonkittie17

Excellent! I’m glad you had a successful appointment. 👏🏻

Green230461 profile image
Green230461 in reply toNeonkittie17

Thank you💐

MadBunny profile image
MadBunny

Great news!I'm so pleased for you 😁

Green230461 profile image
Green230461 in reply toMadBunny

It has made such a difference and perked me up 💐

MadBunny profile image
MadBunny in reply toGreen230461

I bet !

springcross profile image
springcross

That's great news Green, I'm glad it went so well for you and hope the next two are as good. 🤞

allanah profile image
allanah

Great news, its so good when you get a good one. My nurse us known as "bit...h" nurse to my family!

Green230461 profile image
Green230461 in reply toallanah

Funny- her mother is my consultant!

allanah profile image
allanah in reply toGreen230461

Lol!!!

wishbone profile image
wishbone

Well done and glad your appointment went ok.

I had a phone appointment with my rheumatologist last week and after explaining my problems he said that he wants to see me and to expect an appointment in about 3 weeks time. This will be my first F2F in 3 years. I told him how badly deformed and painful my hands and wrists had become and he said they were last x-rayed in 2012... I was surprised it was that recent! :-)

Green230461 profile image
Green230461 in reply towishbone

Poor soul! That is just awful. I have had joint X-rays annually before covid and have been called in for a shoulder review X-ray this month. Best of luck and good health to you.

wishbone profile image
wishbone in reply toGreen230461

Thanks, yes I've been surprised by how often members get x-rayed and scanned. It's not as if I haven't let rheumy know that I've been having problems but I could have been more forthright i suppose. Along with my hands and wrists I'm also having trouble with my shoulders, which have both developed crepitus, the left just recently. I think the rheumatologist wants to try a different med so that will be interesting.......

Good luck to you too.

Otto11 profile image
Otto11 in reply towishbone

You’re not alone regarding X Rays. I had a hip X Ray a few years ago as I complained about the pain which was in fact Bursitis but other than that I can’t remember if/when I last had anything x rayed at all tbh. I have pain in both wrists & knees mainly. 🤔

Pippy25 profile image
Pippy25

All sounds encouraging there Green. Thanks for sharing...onwards and upwards!

Green230461 profile image
Green230461 in reply toPippy25

Thank you! I was even given cream to sort out some spots that I have developed with baricitinib can’t fault the support that I got. It made me feel quite emotional 💐

Neonkittie17 profile image
Neonkittie17

Sounds a great guy. ⭐️

Fruitandnutcase profile image
Fruitandnutcase

Really great to hear someone has had a face to face and it was good caring experience.

Green230461 profile image
Green230461 in reply toFruitandnutcase

Such a nice change. Who would have thought of a hospital visit as a good trip out ……oh dear!

Fruitandnutcase profile image
Fruitandnutcase in reply toGreen230461

😉 if anyone had told the teenage you that a hospital trip would be a great day out I bet you wouldn’t have believed it. Shows how things change. x

Green230461 profile image
Green230461 in reply toFruitandnutcase

Dancing to Madonna/baricitinib drugs?I know which one I would opt for now……..🙋🏻‍♀️

Hurrah

wilbertjellyfish profile image
wilbertjellyfish

🙌🙌 my hospital nurses are great....RA isn't but still.

Green230461 profile image
Green230461 in reply towilbertjellyfish

It was just good to get an appointment with a human being….. how things change🙋🏻‍♀️

Turnaround profile image
Turnaround

I think I saw the same rheumy nurse six months ago. Same hospital group. He's so professionaly helpful and knowledgeable. It was an incredibly positive turning point in my RA . Hope he stays!!!

Green230461 profile image
Green230461 in reply toTurnaround

So do I it makes all the difference with this awful disease to have someone who just listens.

Sheila_G profile image
Sheila_G

This is a good, positive post. Glad to hear you have had a great consultation.

Green230461 profile image
Green230461 in reply toSheila_G

Thank you! I am always moaning so thought as something went well I would mention it🙋🏻‍♀️

Mmrr profile image
Mmrr

Isn't it just great when we are listened too and people are kind ?

Green230461 profile image
Green230461 in reply toMmrr

It makes all the difference when you are I’ll if someone just listens🤔

Mmrr profile image
Mmrr in reply toGreen230461

And much quicker for the health care professional too. A good job , done well is quicker to do than a bad which needs to be unpicked, takes up more phone call /clinic time .

Otto11 profile image
Otto11

Glad you finally got seen & it was a positive outcome for you x

Green230461 profile image
Green230461 in reply toOtto11

Thank you 💐

stbernhard profile image
stbernhard

Such brilliant news. It makes all the difference when you feel listened to and get some kind attention. Very chuffed for you.

Green230461 profile image
Green230461 in reply tostbernhard

Thank you💐

Mattsdog1 profile image
Mattsdog1

That’s great I may have to see rheumatologist before long

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