RA and the gut: Not an easy topic, but has anyone any... - NRAS

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RA and the gut

Shonkie profile image
43 Replies

Not an easy topic, but has anyone any advice on constipation? Everything I take in the way of medication or painkillers has this effect, in spite of a high roughage diet and loads of fruit daily. Not keen on laxatives would prefer natural remedies. Anything on gut health would be good too. Help!

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Shonkie profile image
Shonkie
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43 Replies
Wobbies profile image
Wobbies

I swear by Fybogel as it is just natural isphagula husk. A sachet a day does it for me.

Shonkie profile image
Shonkie in reply toWobbies

Hi thank you for that, something natural is what I want. I shall give it a try.

sunnyweek profile image
sunnyweek

Having this recently I drank a lot more water, warm. Prunes and ground flaxseeds on porridge, green veg, apples, pears and oranges, and massaged my stomach right to left as the colon goes. Probiotics are good too those little yogurt pots. Not immediate but it seems to have worked.

Cheylann profile image
Cheylann in reply tosunnyweek

Too many flax seeds can cause bloating and cramps. Start slow.

sunnyweek profile image
sunnyweek in reply toCheylann

Thank you for that, I haven't used the amount suggested so far, better to start slow.

Gigi71 profile image
Gigi71

I find Kefir on my morning breakfast, helps me and pears also. X

Love2camp profile image
Love2camp

Dried prunes, figs apricots for me ☺️

Shonkie profile image
Shonkie

Good idea, we have them cooked as compote sometimes. That certainly has an effect. Thank you.

medway-lady profile image
medway-lady

My Colorectal surgeon advised me to try Fybogel and its not just about high fibre but softer fibre. It works. And I drink a lot of water as well.

Deeb1764 profile image
Deeb1764

I take either Fybogel or natural senna. I have too partly medication but looking at some IBS issues too. I take most days as I cannot do without. Plus discussion with GP so covered all bases,

Shonkie profile image
Shonkie in reply toDeeb1764

Fybogel seems much recommended I shall definitely try it! Thank you

‘Proper’ coffee. Avoid co-codamol!!

Shonkie profile image
Shonkie in reply to

Fybogel seems to be much mentioned as effective. I am definitely not up for cocodamol. Thank you.

Deeb1764 profile image
Deeb1764 in reply to

Co codamol only thing that helps me even on low dose

in reply toDeeb1764

I take amitryptaline now and it works a treat. CC used to block me up (overshare!).

Madmusiclover profile image
Madmusiclover in reply to

I was told contradictory advice about that! One doctor said amitriptyline would not bung me up my GP said it would! I’ve steered clear.

in reply toMadmusiclover

No problems. Works for me.. my Fibro pain has reduced considerably, and I sleep really well 😴.

Cheylann profile image
Cheylann in reply to

I've been prescribed amytriptelene for my joint pain and muscle spasms. I have Psa and enthesitis. The pain in my elbows keeps me awake at night.I've never taken it as too scared.

Maybe I should as it seems to help lots of people.

in reply toCheylann

I’d give it a go. Just take at about 7pm. My pain has all but disappeared (apart from over-excursion).

Madmusiclover profile image
Madmusiclover

I take lactulose daily following a bowel op. Gentle and old fashioned. I boost this with prune juice after any operation involving morphine or codeine!

Madmusiclover profile image
Madmusiclover in reply toMadmusiclover

All bran has its uses too. Substitute brands do not have the same fibre content….

Sheila_G profile image
Sheila_G

Lactulose is good and very gentle. You can buy it from the chemist. Prunes are a great natural source too.

BoneyC profile image
BoneyC

A GP told me about linseeds/flax seeds. They can be whole or milled, sprinkle on cereals, into yogurts etc. I also buy chia seeds milled. Look at the fibre content on the packet. I buy from Grape Tree, Tesco or Aldi.

MrsSBJ profile image
MrsSBJ

No one else has mentioned Psyllium. Sold at Holland and Barrett in a capsule or as a sprinkle powder under the trade name Lepicol. It’s a soluble fibre and plant based. (From Psyllium husk). Gluten free too. One or two capsules a day enough for me-though the instructions suggest more. (Never dared—!!)

Cheylann profile image
Cheylann in reply toMrsSBJ

Been mentioned. That is what fibregel is.

K2013 profile image
K2013

Lots of kiwis or dried apricots.

LuckyMB78 profile image
LuckyMB78

I have been drinking Kombucha recently and that has really helped me. It’s not particularly cheap to buy but has definitely been worth it for me and a bonus is that I also like the taste! Good luck finding something 🙏🏽

Joannos profile image
Joannos

I think its finding what triggers you, for me its black/red grapes, for my friend apricots. I think, I may be wrong but your fluid intake may need upping.

Another vote for Fybogel here, used if for many years at the onset of meds.

flowerlover profile image
flowerlover

Keffir & lots of water throughout the day

xxspoonerxx82 profile image
xxspoonerxx82

My doctor give me Laxido to help with my constipation it's like Fybogel, 1-2 sachets a day really helps as sometimes I can got 10-14 days without opening my bowls and my stomach gets so bloated it's so uncomfortable I look about 6 months pregnant.

Green230461 profile image
Green230461

I have returned to good old fashioned Potters Codliver Oil and Malt in a jar. Full of natural goodness and added bonus of Vitamin D. As my dad would say you need to keep the cogs moving…….also try to drink a little more water even with juice in might help you🌻

Shonkie profile image
Shonkie in reply toGreen230461

Thanks, good idea.

Hope444 profile image
Hope444

Hi, you can get cubes of dried fruit mix which is more natural from Holland & Barrett if you are in the UK xx

bienassis profile image
bienassis

A difficult one, Shonkie! So many chemical remedies about - some work, some just aggravate. You seem to be eating the good stuff.

Pain killers can be the cause as you say. Especially co-codomol. I've always found the simple herbal remedies the best - slower, but effective. There are many on offer. Trial and error will show what works for you.

Once, long ago, I gave up eating bread, and that made a huge difference. I ration it now. Too much bread of all kinds can slow up the digestive system. Too much roughage can cause trouble - like too little.

Not a lot of help; it's the health problem of Western cultures.

Good luck!

BonnieG123 profile image
BonnieG123

When I was in rehab after knee surgery I that problem. They gave me Senokot and it worked and rather quickly. It wasn’t a prescription so I think you can get it at the drug store.

Shonkie profile image
Shonkie

Thank you.

Happy5 profile image
Happy5

Drink loads of water is my solution. Guess you've tried the usual ready to eat prunes, apricots?

For some reason cherries get me moving.

----54 profile image
----54

Wanted to mention that senna seems to be gentler when taken as a tea (v. pill form). Cascara sagrada is in the same family as senna and can be a bit stronger—both are stimulants. As always, it think it’s important to check in with a doctor before adding in herbs of any sort. I’ve heard that kiwi fruit can help with constipation generally, but I’m not sure when it’s medication-induced. There’s also an abdominal massage device called Mowoot. Maybe your doctor could prescribe it? A massage therapist trained in abdominal massage might be able to help (or teach a family member how to massage you—I suspect that most of us are avoiding such close contact these days). I generally believe that a holistic approach helps over time (hydrating enough, maybe appropriate exercise—possibly including stretching or yoga, getting the right amount of fiber for you, avoiding too much of anything that seems to make things worse—including stress), but I also think that sometimes a person just needs a stimulant. We’re all different, and the G-I tract can be very sensitive. Best wishes with everything!

Zephre profile image
Zephre

Hi I have a Stoma after emergency surgery unfortunately but I suffer bad with constipation but I have tried umpteen different things so now I drink prune juice apple juice and water and this he!ps me as it's a lubrication to keep hydrated so good luck and hope this helps x

I should add that when I used fybrogel it was prescribed by GP and my pain relief was distalgesics not morphine.These days I take the dreaded codeine and it’s really bad for my system. Seeds, nuts, water and exercise do help and when I was able to do yoga that really helped, apparently the moves massage the gut and hey presto you GO 😄

Cheylann profile image
Cheylann

Either fybergel or macro gel. Both are good and both naturel. Fybregel although good causes me cramps. Drink lots of water.

helixhelix profile image
helixhelix

I try to drink lots of water, have an oat/dried fruit for breakfast and a glass of prune juice at lunchtime. Seems to keep things moving slowly 🎳

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