Appreciation Y'all!

[kellymomcars]

I can't express my appreciation for the information and joy that y'all bring to my day! I am a newbee to NRAS and Beyond Psoriasis, and feel so grateful to have my thirst for information satisfied any time I have a question -- I can usually find real answers on HealthUnlocked (not much help in reading predictable pharmaceutical pamphlets - "blah, blah, blah").

And special thanks to the frequent posting people in NRAS! There aren't many days that go by without someone posting a hilarious take on a difficult day -- some of you really are very naughty... my kind of people!

Just a little background about me. I am an almost 60 year old female living in the great state of Texas. I have been diagnosed with psoriatic arthritis as of December 2020. I'm on my 3rd biologic -- Cimzia and Humira gave me horrible hives, and I have just finished my loading doses of Cosentyx with luck so far.

I have been so very fortunate to have been health issue free my whole life until this diagnosis. It has been a quick learning curve with so many health issues added to my plate -- mixed incontinence, cervical radiculopathy, erythrocytosis, to name a few. Now waiting to see a Neurologist because the bottom of my feet tingle all the time -- what's up with that?

I find it very frustrating the lack of knowledge that doctors (outside of Rheumatologists) have about RA and PsA. There are so very many affects chronic inflammation can have on a body, and each problem is treated as it's own issue without thought about the treatment of the cause -- just test, medicate and operate away. Enough of my soapbox...

So, I felt the need to let you know that I appreciate y'all. You are my peeps!

[Neonkittie17]

Sending smiles from this side of the pond 💗😀

[kellymomcars in reply to Neonkittie17]

One of the things I like the most is finding out where everyone live. It makes me feel like beyond all the media noise, we are still just a bunch of people that belong together as a community. Smiles back atcha!

[Neonkittie17 in reply to kellymomcars]

We have a strong bond 😍

[Hidden]

It’s definitely a God send this sight. I get tingling feet . Some of it caused by medication or active disease but I’ve recently been diagnosed with fibromyalgia which has answered a lot of questions. A lot of us have multiple problems.. bloody RA. Yep and medics are useless often feel like I give a lecture on meds and side effects 🙄 keep in touch and do join in the naughty chats it keeps us going x

[kellymomcars in reply to Hidden]

One of my favorite quotes I tell myself is to be "bloody bold and audacious". This has not been my norm, but I definitely am learning.

[Hidden in reply to kellymomcars]

Good one!

[Mmrr]

Welcome ! I love it 'bloody bold and audacious' , you will find a few of us fit into this category on the forum 😎

[kellymomcars in reply to Mmrr]

I know there is! Y'all are great.

[sylvi]

Welcome to the club of RAers darling.xxxx

[kellymomcars in reply to sylvi]

I finally decided to introduce myself after others here were worried because you hadn't posted for a bit. How wonderful to find out that you mattered to people.

[sylvi in reply to kellymomcars]

It is true darling we are a very caring bunch here. xxxx

[stbernhard]

Well, you sound like my kinda girl. Positive! Welcome 😊

[kellymomcars in reply to stbernhard]

Oh my gosh, and your recent post about being stubborn and stupid...! If you don't mind, I am going to add that to my collection of mantras 🤗

[sylvi in reply to kellymomcars]

We all have mantras like that, i am stupid before i am always over doing it and paying for it. Some of the things i get up to are just plain stupid, but at the end of the day we all laugh about it. xxxxx

[Marionfromhappydays]

Bless your heart 😁

Did I get this right ? Meant it the nice way not the sarcastic way 😘

[kellymomcars in reply to Marionfromhappydays]

Oh course you got it right. Here in the South, "bless your heart" is more often than not meant sarcastically. It's still a blessing (and those folks need all the blessings they can get) 😇

[Gladders]

What I like about this site is people tell how it "really is" living with RD.

[kellymomcars in reply to Gladders]

Me too. Can't get this kind of advice anywhere else

[Sheila_G]

It is good to welcome you to the site from across the Atlantic. Stay posted.

[kellymomcars in reply to Sheila_G]

I will. I don't post to any social media anywhere else -- y'all make this feel so safe

[Sheila_G in reply to kellymomcars]

I don't do any either. This is totally different.

[Green230461]

Texas- well if you have to be ill with RA at least you are in a wonderful part of the world I have visions of John Wayne and Audy Murphy as my RA consultants on a horse each with the pink horizon behind them…. And up comes nurse Yul Brenner…….yehaw

[kellymomcars in reply to Green230461]

Oh yeah! My favorite cowboy is my husband (corny but true). Although Tom Selleck makes a pretty picture on a horse !

[Green230461 in reply to kellymomcars]

They both have great teeth!

[Kags1068]

Welcome!👋👋😊xx

[kellymomcars in reply to Kags1068]

Thank you so much!🤗

[Ritaritis]

Hi Kellymomcars, this site has, as with you, been of enormous help to me. I would be lost without it. Their helpline is brilliant and supportive too. I wish you good health.🐕🐕

[kellymomcars in reply to Ritaritis]

Hi backatcha Ritaritis. Thanks for the wishes too.

[Lovetodanceto]

Welcome the folk are lovely here 😀

[kellymomcars]

Love love love your name. Hoping you still get to dance like no one is watching!

[Oshgosh]

Looks greatI know what you mean about medics not having knowledge of. RA.

I had a medication review this week with the pharmacist.I had to explain the benefits of taking immunosuppressant drugs,also side effects,also had to explain why I’ve been on steroids for nearly 3 years ( when they try to reduce the steroids,I get to 8 MGM’s,I start to feel unwell,spir( lung function detioriates on testing.

I had a similar conversation with the palliative care consultant.again had to justify why I was on the drugs. I’m on.

One thing the pharmacist asked me was do you get confused with your medication ?

I replied that I always check at least twice.

My main problem with medication is when they change manafacturers ,then the tablets look different.

He didn’t reply to this comment.

I’m sure that M not the only person who has issues with thus