I can't express my appreciation for the information and joy that y'all bring to my day! I am a newbee to NRAS and Beyond Psoriasis, and feel so grateful to have my thirst for information satisfied any time I have a question -- I can usually find real answers on HealthUnlocked (not much help in reading predictable pharmaceutical pamphlets - "blah, blah, blah").
And special thanks to the frequent posting people in NRAS! There aren't many days that go by without someone posting a hilarious take on a difficult day -- some of you really are very naughty... my kind of people!
Just a little background about me. I am an almost 60 year old female living in the great state of Texas. I have been diagnosed with psoriatic arthritis as of December 2020. I'm on my 3rd biologic -- Cimzia and Humira gave me horrible hives, and I have just finished my loading doses of Cosentyx with luck so far.
I have been so very fortunate to have been health issue free my whole life until this diagnosis. It has been a quick learning curve with so many health issues added to my plate -- mixed incontinence, cervical radiculopathy, erythrocytosis, to name a few. Now waiting to see a Neurologist because the bottom of my feet tingle all the time -- what's up with that?
I find it very frustrating the lack of knowledge that doctors (outside of Rheumatologists) have about RA and PsA. There are so very many affects chronic inflammation can have on a body, and each problem is treated as it's own issue without thought about the treatment of the cause -- just test, medicate and operate away. Enough of my soapbox...
So, I felt the need to let you know that I appreciate y'all. You are my peeps!
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kellymomcars
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One of the things I like the most is finding out where everyone live. It makes me feel like beyond all the media noise, we are still just a bunch of people that belong together as a community. Smiles back atcha!
It’s definitely a God send this sight. I get tingling feet . Some of it caused by medication or active disease but I’ve recently been diagnosed with fibromyalgia which has answered a lot of questions. A lot of us have multiple problems.. bloody RA. Yep and medics are useless often feel like I give a lecture on meds and side effects 🙄 keep in touch and do join in the naughty chats it keeps us going x
I finally decided to introduce myself after others here were worried because you hadn't posted for a bit. How wonderful to find out that you mattered to people.
We all have mantras like that, i am stupid before i am always over doing it and paying for it. Some of the things i get up to are just plain stupid, but at the end of the day we all laugh about it. xxxxx
Oh course you got it right. Here in the South, "bless your heart" is more often than not meant sarcastically. It's still a blessing (and those folks need all the blessings they can get) 😇
Texas- well if you have to be ill with RA at least you are in a wonderful part of the world I have visions of John Wayne and Audy Murphy as my RA consultants on a horse each with the pink horizon behind them…. And up comes nurse Yul Brenner…….yehaw
Hi Kellymomcars, this site has, as with you, been of enormous help to me. I would be lost without it. Their helpline is brilliant and supportive too. I wish you good health.🐕🐕
Looks greatI know what you mean about medics not having knowledge of. RA.
I had a medication review this week with the pharmacist.I had to explain the benefits of taking immunosuppressant drugs,also side effects,also had to explain why I’ve been on steroids for nearly 3 years ( when they try to reduce the steroids,I get to 8 MGM’s,I start to feel unwell,spir( lung function detioriates on testing.
I had a similar conversation with the palliative care consultant.again had to justify why I was on the drugs. I’m on.
One thing the pharmacist asked me was do you get confused with your medication ?
I replied that I always check at least twice.
My main problem with medication is when they change manafacturers ,then the tablets look different.
He didn’t reply to this comment.
I’m sure that M not the only person who has issues with thus
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Any happy comments will be so appreciated right now 😇😇
Bit of a work/sicknote dilemma, any opinions greatly appreciated.
Contacts in my upcoming absence
Now more than ever we should appreciate ALL key workers...
NRAS Update: Coronavirus (Updated on 13th March)
