Another disease !!: Hi just a question..... i was... - NRAS

NRAS

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Another disease !!

nellysgran profile image
11 Replies

Hi just a question..... i was diagnosed with Parkinsons disease yesterday, so was given more tablets and today i feel like rubbish....no energy, no feeling to do anything just sleep,,,,,,has anyone else been given the same diagnosis, ? i feel i just want to know i am not alone.xx

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nellysgran profile image
nellysgran
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11 Replies
Neonkittie17 profile image
Neonkittie17

I’m so sorry to hear this Nellysgran. I am aware there is a Parkinsons forum (Cure Parkinsons) on HU and hope you can find some help there re how to deal with things as someone newly diagnosed. Hope you will be given good consultant advice on how to control it and meds to help you feel steadier soon. 💗x

helixhelix profile image
helixhelix

How sad for you, and unfair. One chronic disease is enough for anyone!

I had a friend who got Parkinson’s pretty late in life. The thing I remember most is having to adjust to his meds..and the doctors having to find out which doses and combinations would work best for him....So your RA experience might help.

But it must be a scary time, so do seek support.

Sheila_G profile image
Sheila_G

So sorry to hear this. As you have just been diagnosed it is early days for adjustment with meds for RA and new meds for Parkinson's. Once you are sorted with doses etc, I am sure you will start to feel better.

helenlw7 profile image
helenlw7

I’m so sorry to hear about your diagnosis of Parkinson’s disease. I’m sure it came as a bit of a shock, perhaps your lack of energy and the need for sleep is your body’s way of reacting to the news. I hope, that when you get the right combination of drugs, they will slow down the progression of the disease. Thinking of you.

Green230461 profile image
Green230461

So sorry to hear your news. Take care 🌺

medway-lady profile image
medway-lady

I just wanted to say I'm sorry to read this and hope you do find some good advice. If you lived in North Kent there is a good local Parkinsons Group that meets monthly in the local cafe.

Blodynhaul profile image
Blodynhaul

Feel for you very much. Sincerely hope you can get proper support. There must be a number of other folk with Parkinson's as well as RA and some who cope very well. Sorry can't help otherwise, but wishing you all the very best X

Mmrr profile image
Mmrr

I'm so sorry to hear this. Best wishes to you.

nellysgran profile image
nellysgran

Thank you all for your responses, it is hard getting to grips with it , but i know on this site i can rely on all you lovely people to cheer me up 😀xxx

Sorry to hear your news. Must be a great shock. A friend of mine was diagnosed a couple of years ago (she doesn’t have RA but other chronic illnesses). It doesn’t seem to have affected her too much xxxx

As others have suggested, look up the other forums on here; who will know things first hand. Take care.

Ruth12345 profile image
Ruth12345

Sorry to read this. I wish you all the best. Not much help. Thinking of you tho as you start your next challenge. Be kind to yourself. 💐💐

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