Octave study update

[Dave74]

I emailed Birmingham University last week for an update and this is the reply, I hope it helps

The OCTAVE trial is still recruiting, and the full results will be reported once the trial is completed, which is likely to be towards the end of the year. Nevertheless, we recognise the importance of the results of this trial to many people in your position and for this reason, we are have releasing an early analysis of the OCTAVE results. These analyses are happening now and we will be releasing a pre-print reporting this interim results in the next few weeks and will make a summary of these interim results publicly available on our trial webpage birmingham.ac.uk/octave

[Neonkittie17]

Thank you so much Dave for letting us know this and good to know they are still recruiting. The more people the more info we will get. 🙏🏻

[Dave74 in reply to Neonkittie17]

Just looked to get Involved but I don't qualify 😢

[Neonkittie17 in reply to Dave74]

What people are they looking for at the mo? I’d help if I could in Leeds.

[Dave74 in reply to Neonkittie17]

On the link there is list of requirements, I believe if uv had 2 jabs then its a no!? 🤔

[Neonkittie17 in reply to Dave74]

Well I had two but I’m going to have another two soon as the first ones didn’t show any antibodies. Maybe that could be of interest to them.

[vonniesims in reply to Neonkittie17]

Yes, St James are participating

[Neonkittie17 in reply to vonniesims]

Thank you

[Otto11 in reply to Neonkittie17]

Hi just butting in ( again). I spoke to you yesterday & just noticed your in Leeds. I’m under Chaple Allerton guess you are too. X

[Neonkittie17 in reply to Otto11]

No I was offered CA, but my local hospital is so much nearer as I am just south of Leeds now and just out of the Leeds postcode area, and my rheumy team all came from Leeds. I have been to CA several times for an RA group which sadly folded a few years back. x

[Otto11 in reply to Neonkittie17]

Right I see. YesYork is 5 mins away but was undiagnosed there for 10 years by same Rheumatologist until my GP asked me to go privately out of York so went to Leeds & was diagnosed at first appointment. I started with sero negative which changed somewhere along the way to sero positive. But that was over 20 years ago & how I ended up in Leeds. York has several new Consultants these days who have offered me to return to York ( several I know from CA) but have decided to stay with Leeds at least for now.

It would make life a lot simpler if the dots were all joined up though.

Take care xx

[Tracy-NRAS]

We have also been putting updates in our E-News so if anyone isn't signed up to that you can do so here nras.org.uk/about-nras/news...

[Neonkittie17 in reply to Tracy-NRAS]

Thank you I know you’re always quick to let us know any news. 🙏🏻💗

[Dave74 in reply to Tracy-NRAS]

Thank you!

[Boxerlady in reply to Tracy-NRAS]

Thank you! 🙏

[Madmusiclover]

Thank you!

[BoneyC]

Thanks for the update. Bit annoyed my hospital is listed but when I contacted the rheumatology department a couple of weeks ago enquiring about trials, I was told they're not doing any!

[helenlw7]

Thanks for that Dave. I took part in the study. I’m a patient at the QEH and they sent me a letter. I was double jabbed at that point but you could take part if you had only just had your 2nd jab. I will be very interested to see the interim results.

[GinnyE]

Thanks for posting. Will be looking out for results.