Patient organisation briefing notes for MPs

[Piwacket]

Hi to everyone- I haven’t written anything on the forum for quite some time due to severe illness in last 6 months including emergency surgery on Xmas day and sepsis but I have been following you all and now feeling stronger and better

Like everyone I am very concerned about government announcement and today I have written to my MP to highlight our plight and raise awareness of this document which all MPs should receive

Asking him to raise as much awareness of these issues and concerns as possible via parliamentary channels.

Other people could do the same if they want to also it is very interesting read too

kidneycareuk.org/documents/...

[happytulip]

Thank you for sharing. I had thought of writing to my MP and this has encouraged me to do so.

[Froggie70]

Thank you. I’ll get onto this tomorrow. Take care. X

[happytulip]

I hope you don't mind but I've shared this on the Lupus UK forum too as many on there are immune compromised.

[Piwacket in reply to happytulip]

That’s- great the more we can let people know the better

[Piwacket in reply to happytulip]

I have also just emailed versus arthritis to let them know link is not working

[Julied24]

Thank you ☺️ I was just about to write to my MP and this will be such a help

[Piwacket]

Hopefully it will help to empower us - I am going to contact our local tv news channel as well as local councillor who supports mental health issues

[happytulip in reply to Piwacket]

Huw Pym, the BBC reporter was on 5 Live with me at the start of the pandemic. I still have his email address. I might get in contact.

[Froggie70]

Just noticed when clicking on the Versus Arthritis link in the letter that it doesn’t work. Hope they fix this, don’t need to give politicians an excuse not to read this🤔

[Piwacket in reply to Froggie70]

I have just contacted them to let them know

[Froggie70 in reply to Piwacket]

Thank you🤗

[AKA13]

Thank you for sharing this ...... very informative.x

[Lolabridge]

I've emailed my MP setting out our concerns and sent him the link to the document.Thank you for prompting me into action! x

[Lovetodanceto]

Am really glad to hear you are improving and thank you very interesting read well take care