I’ve ground to a halt . Nothing works and I’m stiff and unbendable and so swollen. Always amazes me how the weather effects me . I’m like a robot 🤖 trying to work who keeps getting electric shocks. I was pre warned by the joints last night and got the full whammy this morning. In for a long day .
Humidity is high: I’ve ground to a halt . Nothing works... - NRAS
Humidity is high
36 Replies
•
Yep, my right knee is deeply unhappy today. It’s just exhausting isn’t it. All things will pass 😌 love to all my RA friends x
• in reply toBlueskysunshine
It’s a day to pamper ourselves. BS x
Poor you - do you think that it's RA, fibro or a mixture of the two?
I'm not feeling 100% - a bit nauseous and generally bleurh and it does feel clammy here (very overcast) so maybe a good thunderstorm is needed to clear the air.
• in reply toBoxerlady
My hubby asked the same question. It’s both. I’ve a few tender but not bad joints the extreme stiffness of joints is RA but I think fibro is leading most of the symptoms as muscles stiffness worse . Went for a walk ( Good or bad idea🤷♀️) swelling is RA the stiffness in joints especially feet improved ( RA) but the the muscles seized up completely (fibro) .. 🙄can’t win . It’s very steamy here raining but so humid.
It’s horrible isn’t it . It’s a day where we need to take it easy .
Take care BL x
You have my every sympathy as I ground to a halt yesterday, it hit me like a ton of bricks. Not great today but at least can move a bit. So dig deep and keep your pekker up. I know it's so hard xx
Oh no! A day on the sofa for you then. Hope you feel better soon x
• in reply toLolabridge
Groundhog Day .. or so it feels 😁
Lots of rest and TLC needed today for you. I’m a bit swollen today too with my joints and have a beautiful butterfly rash from my Lupus on my face too. Good news is I think I am starting to improve after my kidney infection so counting my blessings. Nice cloudy day here today at the moment but so humid. Gentle hugs 🤗 x
• in reply toSummerrain14
Great news Gail re infection but poo to lupus and swelling.. take care Gail xx
Summerrain14• in reply to
I really struggle in the summer months like so many of us. Sun is a really big trigger for lupus so looking forward to getting back on my biologic tomorrow to hopefully settled my RD and Lupus again. I have been five weeks with no biologic due to my infection so am a little excited to be able to have it tomorrow. I need to get out more being excited about having my biologic tomorrow. 🤣 x
• in reply toSummerrain14
Oh i know it’s an a Rd thing no one else gets it .. the excitement of using a drug can’t be beaten x😂
Summerrain14• in reply to
I sound like I have a drug addiction with being so excited about starting my biologic again tomorrow. 🤣. I only share my drug habits with you lovely lot who so get it. 🤣. When I was in hospital the nurse commented about the amount of medications I am on. Really embarrassed me as I am on 17 different types of medications and that was without the antibiotics and anti sickness meds.
I just said to the nurse welcome to the world of RD and Lupus and all their friends but was embarrassed by all the meds I take daily just to function. x
• in reply toSummerrain14
Not very nice of the nurse. Who in their right mind wants to be on 17 types of medication. I’m on 8 and need to use a dosett box to stop getting in a muddle. X
Summerrain14• in reply to
Honestly I think I need some counselling after that hospital stay. Some of the staff were just awful. The staff in urgent care in a and e and the medical assessment ward were all lovely and very knowledgeable of my RD and Lupus whilst treating me for my kidney infection but some of the staff on the ward need some serious retraining in patient care in all respects. Thankfully all the doctors apart from one were fab. One nurse made me cry when I told her how unwell I was feeling and then proceeded to be sick 17 times that day. Her advice to me was to breathe properly. 🤷♀️. It was a good job I was so ill at the time or my white stick would have been used in an inappropriate way. 🤣 xx
• in reply toSummerrain14
That’s shocking. I think you should complain. It feels like we are going back to Victorian times . My family have experienced this. The worst was when my brother in law had stomach cancer and had his stomach removed. My sister would arrive in the morning and his waste bags would have burst during the night and he was and his bed covered in it . My sister would have to wash and clean him and change the bed as there was only 2 nurses for 19 patients some of them with obvious mental problems. One particular man would stand in the middle of the ward naked and masturbating . Thankfully my brother in law survived thanks to the skills of the surgical team. I wonder how many didn’t survive the after care .. makes you question so much .
Summerrain14• in reply to
I just don’t have the energy to complain and in honesty I don’t think it would get me very far. There are sadly more people who have experienced far worse than me. Just awful what happened when your brother in law was in hospital and I am so pleased he is doing ok now. It is hard on the staff in hospital especially with no visitors being allowed and all the extra measures that are in place due to Covid but basic manners and medical care shouldn’t be impacted on. I will put my experience behind me and be thankful that I have come out the other side of it. It is awful seeing the NHS being run into the ground by decisions made my politicians. x
That is good news at last🤔
Thanks so much. I am definitely improving slowly but surely. 😊 x
🌈
Me too. Everything swollen up and stiff like board with awful knee, ankle and back pain. Hands useless. Putting dogs eye drops was a farce, bottles kept shooting out of my hands. Dog not impressed. Wouldn't be so bad but I have to do them 11 times per day. 😂
• in reply toWobbies
🙄😂
So does that mean no naked sunbathing today ? Always tomorrow 😎
• in reply toMarionfromhappydays
Never naked these days 😂😂too hard to get clothes on and off then there’s don’t frighten people 😂😂x
Marionfromhappydays• in reply to
😉
🤣🤣. I would be served with an asbo if I sunbathed naked x
ASBO 😅 mee too, me too !
At least we will be in good company with each other 🤣 x
• in reply toSummerrain14
😂😂
That’s the one thing that no med has ever managed to reduce for me, the reaction to heat and humidity 😔
I am convinced it is something to do with air pressure hot or cold it’s the pressure that hits me 😟
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