High Temperatures

[Riaisbad]

Can anybody help me? I’ve had RA for 40+ years and managed to bring up 2 children, work and run a home despite being quite disabled. I had both knees and both hips,replaced and got divorced! Which gave me a new lease of life. In recent years I’ve acquired sjoegrens & Reynauds along with hypothyroidism but still managed. Last year the menopause hit and I had cervical decompression which was very traumatic. Since then I’m constantly tired and if I get cold and tired I get a high temperature which makes me feel so rough then after paracetamol, a sleep and lots of water i seem to recover and my temp drops. Doctors say it’s the auto immune conditions but I wondered if anyone else has anything similar? I’ve heard people say if they exert themselves they end up in bed for 2 days afterwards but never heard of temperatures

[Potatos]

I had a high temperature every evening when I first started with RA. They went once it was controlled with methotrexate and adalimumab.

[Riaisbad in reply to Potatos]

I’ve had it over 40 years though. My inflammation markers are very high too so maybe it’s connected?! It’s such a complex disease this RA.

[Potatos in reply to Riaisbad]

My CRP was very high at the time. It is always below three now so that would fit.

[Riaisbad in reply to Potatos]

My crp was 118 but recently dropped to 79 so it’s still high. I’ll get another blood test I think. Thank you for your help 😃

[Pands]

Hi - I do sometimes get a temp along with the cold and tiredness - usually when I have overdone things. Only tends to happen towards the end of an afternoon/ evening. My cheeks go that funny pink colour and I feel dreadful. just do as you say- take paracetamol and go to bed. Best wishes.

[Riaisbad in reply to Pands]

It sounds identical to how I feel. Thank you for your reply 👍

[Knitmare]

I only have RA which I've now had for just over 6 years and my temperature is often high, especially at night for some reason. It's just another effect of RA and settles by itself. I do Take medication but manage my condition very successfully, according to my consultant, by exercising and keeping my body fit & my joints moving. Occasionally though I do get chronic fatigue and then I rest and sleep and I'm soon back on my feet. I take my hat off to you for all you've achieved, it shows just what can be done with the right mindset. 👏👏👏

[Riaisbad in reply to Knitmare]

Thank you for your kind words but I think us RA’s have to be able to be strong to get through life. We are a rare breed! 😀

[oldtimer]

It does sound as if your disease is not well controlled.It merits a discussion with your rheumy team about your management plan!

[Riaisbad in reply to oldtimer]

Thank you for your replies 👍

[allanah]

Yes unfortunatly I did, buy it was a game of guessing was it an RA flare or an illness was always the problem x

[Riaisbad in reply to allanah]

Even the rheumy’s seem to fob me off but all you guys Sharing your experiences makes me realise it’s a common problem with uncontrolled RA.

[Basilly]

Yes that sounds similar to me and my RA is not yet under control. Well done for being so strong day after day.

[Riaisbad in reply to Basilly]

😊

[Hobbledehoy]

I agree with Oldtimer, you need a review. They can do it virtually (as mine will be), but at their discretion can invite for a face-to-face. It might help to write down what you want to say so's you don't miss the chance. And just a thought: you said you think you'll have another blood test. I believe you should be having them v regularly regardless. I have to go every month. You have a lot to bear, yet have achieved a great deal. Best wishes for a new chapter x