Baricitinib has arrived!!!’: Well after all the trouble... - NRAS

NRAS

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Baricitinib has arrived!!!’

18 Replies

Well after all the trouble getting this medication it finally arrived this morning. Read all the bumph took the tablet. Have real hopes for this one.

One hour later started to get facial tingling and itching 😤really hope this just teething problems. This has happened with both Hydroxychloroqine and sulfasalazine unfortunately both times an A&E job. Hubby has epi pens within arms length 🤬

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18 Replies
Lolabridge profile image
Lolabridge

Hooray .... and boo! Hope the itching and tingling is over quickly. Fingers crossed the drug works well for you. 🤞🏻

allanah profile image
allanah

Fingers crossed it settled down !

Mmrr profile image
Mmrr

Hip, hip, hooray. I found baricitinib to be useful, but I had a number of fungal and viral infections, changed to toficitinib, no more infections so far

🤞🤞🤞

Pippy25 profile image
Pippy25

Keeping my fingers crossed for you that things will be ok xx

springcross profile image
springcross

Hope you don't get any problems. 🤞🤞

Boxerlady profile image
Boxerlady

Keeping everything crossed for you; good that hubby has epi pens at the ready but hopefully won't be needed.

Biofreak profile image
Biofreak

I really hope your tingling etc stops soon. Hubby standing by with epi pens is good. Fingers crossed they are not needed 🤞🤞

ubound profile image
ubound

Congratulations! It wasn't long ago that I was asking people here about it. Now after 6 weeks I can say it works for me too. I didn't have any problems with it yet. It didn't seem to work until around day 26. But now I am reducing steroids, I wonder how far I can go. Hope it works for you too!

Liberty43 profile image
Liberty43 in reply toubound

Been on baricitinib for 18 months now and it has been life changing for me, even my many nodules on arms have disappeared. My Rheumatologist was taken by surprise by that, as was l. Wouldn’t want to be without it. Good Luck to you having a similar experience.

Liberty43 profile image
Liberty43 in reply toubound

Forgot to say that l felt the effects in the second week.

in reply toLiberty43

I’m delighted for you 🤞I’m as successful as you

Got my fingers crossed for you x

Pinkplum profile image
Pinkplum

Hope the reaction passes for you, I had the same reactions to hydroxy and sulfasalazine.I’m also on barcitinab just over 3 months.

It’s not working fir me yet, I hope you get a better result x

in reply toPinkplum

🥺hate this trial and error. Hope something works soon x

Pinkplum profile image
Pinkplum in reply to

I know it’s hard it’s such a long road x

Ms-D profile image
Ms-D

Im so happy its arrived but sad you had the after effects. I hope it doesnt cause you a trip to a&e. Thinking of you hun x

Alan71 profile image
Alan71

Worked for me from day one

Monkeysmum profile image
Monkeysmum

🤞Hoping you feel better this morning and that this one will do the job for you. Xx

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