Anyone had experience of ankle fusion following ankle... - NRAS

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Anyone had experience of ankle fusion following ankle replacement?

Pam-51 profile image
4 Replies

Hello,

A bit of history. 1998 had a R ankle replacement which has never been very successful. Since that time have had a L ankle fusion, R hip replacement, L knee replacement plus R mastectomy for breast cancer, also developed Rituximab induced Hypogammaglobulinaemia. So for 20+ years have been in and out of a wheelchair due to immobility. Also developed osteopenia 2006, treated with AA, have recently had a second stress fracture of my R fibula which they suspect is due to biomechanical influences but are doing bloods to exclude vitamin D deficiency and parathyroid disease.

Suspect I may need further surgery on my R ankle to correct my gait to prevent further damage and 6 years ago consulted an ankle surgeon specialist for advice. At that time I was experiencing numerous infections which was later found to be due to the Hypogammaglobulinaemia. Now I have treatment with immunoglobulins to treat this condition. Know the surgery will involve fusion of the previous replacement and external fixation. Anyone gone through this procedure? Your input would be most valuable to me.

I am now 69 and have had RD for over 40 years but am still keen to maintain as much mobility as possible. Any experiences would be most valuable.

Thanks Pam

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Pam-51
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4 Replies
springcross profile image
springcross

My goodness Pam, you've really been through the mill haven't you! I can't help you with anything I'm afraid but I really hope you can get the advice you need from someone. All the best to you. x

EmmaSpicer-NRAS profile image
EmmaSpicer-NRAS

Hello Pam, thank you for sharing your story. If you would like any guidance or would like someone to speak to, our NRAS helpline is open daily between 9.30am - 4.30pm nras.org.uk/helpline/

Loyd profile image
Loyd

My goodness - you deserve some good news and treatment. I had an ankle fusion 3 weeks ago so early days for me. Did consider an ankle replacement but heard more can go wrong. I wish you all the best. If you ever want updates as things progress for me to help you feel free to ask. I assume all went well with your fusion? If so maybe go for another on your right one? PS what is RD?

Pam-51 profile image
Pam-51 in reply to Loyd

My fusion was very successful thanks, quite a few years ago now. Concerns about my ankle are on a back burner at the moment as I have a left hip replacement in a couple of weeks so focused on that at the moment. Keep doing your exercises and you should have a good result from your op. It’s just a long process. Think I was in a cast for 8 weeks, then a boot. Hoping you do well. RD is Rheumatoid disease. Best wishes and keep us informed of your progress.Pam X

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