too late diagnosis what to do next

[gengol]

February 20, 2020, I was diagnosed with rheumatoid arthritis, unfortunately, the diagnosis was made too late, although I was at the doctor about 6 years ago, later 3 years ago and already with symptoms of the disease, unfortunately, he did not order any blood tests, now the disease, unfortunately, irreversible impairs the joints of the arms and legs. it made it very hard for me to do physical work, and even more often there are situations in which my wife has to help me in everyday activities. and for the last few years, I also had a problem with maintaining any work for reasons which in retrospect and finally made the diagnosis understandable.

[KittyJ]

I’m sorry to hear this gengol but it’s not too late, you finally have a diagnosis and can now work with your rheumy to stop any more joint deterioration. You don’t say what meds you are on and how king you’ve been taking them? Some can take a few months at least to start working but of course they won’t repair the damage you already have. Joints can be replaced, you would be surprised how many can. Obviously that’s a decision for you and your doctors to make but it is possible.

Have you thought about applying for PIP?

Have you had a look at the NRAS publications, they cover lots of topics and are free to download, here is a link

nras.org.uk/publications/all

[oldtimer]

That's tough. Try not to let your anger at the late diagnosis affect how you interact with your medical team now. Work with them (it should be a partnership) to make the most of what you have. Some function can be recovered but not all (I know).

It's difficult losing the ability to do things and anger is a natural response - I know I still get furious at the unfairness of it all even after nearly forty years of it. And I hate being dependant on others to do things I used to do for others.