Any advice for very painful knees?: My knees started to... - NRAS

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Any advice for very painful knees?

Kalimers65 profile image
28 Replies

My knees started to become a problem 3 and a half months ago and since shielding 3 months ago they have got worse and worse. I haven’t been doing my usual walks taking my grandson to and from school and I think that has made them deteriorate .

For the last 3 days my right knee and a lot of the lower leg is considerably swollen . The pain in my knees is at the back of each knee.

I’m on 5 tablets of sulphasalazine and most days in the last fortnight 2 naproxen ( with tummy protector ). Any advice would be great.

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Kalimers65 profile image
Kalimers65
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28 Replies
bubblyalex profile image
bubblyalex

I would talk to your rheumy team. How long have you been on Sulfasalazine. I have only been on it 3 and a bit weeks so waiting for it to kick in.

Kalimers65 profile image
Kalimers65 in reply tobubblyalex

I’ve been on Sulphasalazine for nearly 18 months. It took quite a while to kick in. I hope it helps you. Thanks for getting back to me.

Jan31 profile image
Jan31

I’ve just had two total knee replacements and was finding they’d started to hurt as I wasn’t doing much exercise. I’ve started to do physio exercises - Dr Jo (female) on You tube although there’s loads. If you do strengthening exercises including Pilates that would hopefully help, although if it’s disease related then exercise is only part of the solution. Hope you improve. Rheumy teams are often good to talk to (mine always are!). Take care

Kalimers65 profile image
Kalimers65 in reply toJan31

Thanks Jan31 I’ll up my exercise. Sending you good wishes for your knees too.

Caza profile image
Caza in reply toKalimers65

Sorry your having trouble with your knees. Since lockdown I’m also having a lot of problems with my knees. Usually I do aquafit twice a week, which keeps my joints moving. But of course I can’t now 😞. So now I’ve been walking daily over the heath & my knees are so angry 😡. Both are bright red hot to touch & very swollen & painful 😖 I can’t take painkillers. It’s so hard to get the balance right. It really uplifts me to be walking out on the heath. So difficult isn’t it not enough isn’t good too much isn’t good either 🤷‍♀️

Kalimers65 profile image
Kalimers65 in reply toCaza

Yes you’re right about exercise Caza. It really uplifts me too but getting it right is hard when you’re in pain. I hope your knees improve soon for you.

jacbub103 profile image
jacbub103

Sulfasalazine , failed for me ,my knees were very swollen and painful and I couldn’t walk .An X-ray revealed that they had been destroyed by rheumatoid , I had 2 knee replacements and a new drug for the last 18 months and every thing is fine again .

Kalimers65 profile image
Kalimers65 in reply tojacbub103

Oops I replied to myself rather than you. Thanks for replying. What new med are you on now?

jacbub103 profile image
jacbub103 in reply toKalimers65

I’ve been on Xeljanz/ Tofacitinib x

oldtimer profile image
oldtimer

It is essential that you keep the knees exercised. Have a look on the NRAS website, or a physio website for suitable knee exercises. You need to do them little and often and really build up the muscles around the joint to keep it stable and as pain-free as possible.

Kalimers65 profile image
Kalimers65 in reply tooldtimer

Yes you’re right. When they started getting so painful my exercise level dropped which I shouldn’t have done. I’ll give myself a good talking too! Thanks oldtimer.

bubblyalex profile image
bubblyalex in reply toKalimers65

Be careful with the exercise. It’s a balancing act between rest and moving. My knees just got worse and worse and they inflame much more if I overdo it. My body doesn’t tell me until after the fact if I have over overdone it 😔

Kalimers65 profile image
Kalimers65 in reply tobubblyalex

I’ll be cautious . It’s a right bummer when it’s in your knees isn’t it.

bubblyalex profile image
bubblyalex in reply toKalimers65

Yes it really is. I walked on a little incline in my garden yesterday a few feet... knees like rocks and huge 😔

Kalimers65 profile image
Kalimers65 in reply tobubblyalex

It's like being tortured by a beast isn't it. I've had bad 3 years, for 6 months I couldn't lift my arms with the pain and stiffness in my shoulders but I said to myself, 'Well at least your knees have been spared this time round.' Aha thought the beast - just you wait! I'll show you!! How long have you had RA?

bubblyalex profile image
bubblyalex in reply toKalimers65

Officially only a month but my doc has suspected it since September. It really all kicked off last March when I had this blasted fall. I’m stuck with gutter crutches and various other aides to help me. Steroid injections into the knees and started Sulfasalazine just over three weeks ago and waiting for the miracle 😁

Kalimers65 profile image
Kalimers65 in reply tobubblyalex

I can't remember how long Sulphasalazine took to kick in a bit, certainly 6 weeks. How old are you not wanting to be rude? I was 38 when in one hour my life changed and I could barely walk. I'm 67 now. I've had periods of remission with no meds, 2 of them from getting flu - within an hour of the symptoms I could feel all the fluid attacking my feet leaving me - it was like a miracle. My last remission was about 13 years. I've been very, very lucky. I hope it happens for you. I've found reflexology to really help, loads of fruit and veg, no red meat. I went 80% vegan last August when the level of inflammation hit 90 and I had 4 pain free months. Then I had another health scare and the beast unleashed itself on my knees. The best advice I was given by a counsellor on the RA help line when I was 45 was to walk through the pain. The counsellor also had RA. this forum is very supportive and stops the isolation you can have. I really hope you improve soon. When I've been relatively pain free yoga has been brilliant too.

bubblyalex profile image
bubblyalex in reply toKalimers65

Adding in... try and sit on as high a chair as you can ... get the OT to give you sofa/chair raisers. The pressure on the knees when going from sitting to standing is very very great and makes the inflammation much worse.

Kalimers65 profile image
Kalimers65 in reply tobubblyalex

Yes I‘ve boosted my seat and have various strategies for getting up from sitting. Hope you start to feel better soon.

bubblyalex profile image
bubblyalex in reply toKalimers65

You too 😁👍🏻

Kalimers65 profile image
Kalimers65

I don’t think it’s doing much for me either. What new med are you on now?

Madewrong profile image
Madewrong

Hi, thanks for sharing, I have experiencing exactly the same, I also have tenderness and pain in the backs of my calfs, also since shielding.

I can barely walk when I get up from sitting most days.

Kalimers65 profile image
Kalimers65 in reply toMadewrong

I had a bag of frozen peas on the back of my right knee (which is the worst of the 2 knees) several times yesterday and that helped. I’m going to take regular short walks at quiet times of the day because shielding has definitely impacted the state of my knees. I hope your knees improve soon for you.

Madewrong profile image
Madewrong in reply toKalimers65

Thankyou and I hope you are feeling much better and have been able to get out for a few walks xx

LauraJM profile image
LauraJM

My knees have also got worse due to lack of exercise, hard to get enough when shielding, but guess it's better to have bad knees than covid-19...

Kalimers65 profile image
Kalimers65 in reply toLauraJM

Yes,I'm with you there for sure.

Veteran250 profile image
Veteran250

Dear Kalimers....... I used to suffer with painful knees due to arthritis in both knees...... I now use..... Masons Dog Oil.... you can buy it on eBay, it comes in vaseline form..... I rub it into both knees before going to bed, and get to sleep pain free through the night. It may not work for you, but it wont hurt to try it.

Take care and stay safe.... I live in Kent,Uk.

Kalimers65 profile image
Kalimers65 in reply toVeteran250

Thanks for your answer Veteran. I’ll get some of that. I’m in Kent too. It’s a lovely county.

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