Benepali side effects: Hi everyone....hope you are all... - NRAS

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Benepali side effects

Ms-D profile image
Ms-D
4 Replies

Hi everyone....hope you are all well and safe. I started benepali two weeks ago and this past week has left me physically and mentally exhausted. I know it will take time to work but im in more pain now than before treatment. I am exhausted from the moment i wake up despite having 8 hours sleep. Anyone else go through this and will it get better? X

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Ms-D profile image
Ms-D
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Lolabridge profile image
Lolabridge

If you only started Benepali 2 weeks ago I think its unlikely to be that causing your problems. Exhaustion and fatigue sound more like untreated RA because your new drug has not started working yet, particularly if you're not taking any other drugs for your RA.

I hope you get some relief soon.

Soundofmusic52 profile image
Soundofmusic52 in reply to Lolabridge

Hi we’re all different but it took benepali about 12 weeks to start making a difference for me as well as methotrexate and hydoroxoquine still get days were I have no energy my consultant is still tweaking different things if no better in 6 weeks so hang in there x

Ms-D profile image
Ms-D in reply to Soundofmusic52

Thank you. Will see if i can get to speak to nurse tomorrow about it. Im not taking any dmards just benepali.x

Lolabridge profile image
Lolabridge in reply to Ms-D

Ask if they will allow you to have a short course of steroids if you are really struggling and in pain. Otherwise, unfortunately I think you will just have to stay rested and wait for the Benepali to start working.

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