Could someone ask about PIP again please ...

[allanah]

Those were the days lol xx 🤯😂🤗

[Shalf]

😂😂😂

[beeckey]

Yes it would make a change from Covid 19

[allanah in reply to beeckey]

Or brexit please lol

[helixhelix in reply to allanah]

Yah! Brexit! I miss it!!!

[Eiram50]

🤣

[sunnyweek]

Yeah! 😄😃😁

[sylvi]

Or Sylvi and her jokes, pmsl.xxx

[Wolf221400]

Think pip will not be doing claims any time soon. Mine is with the assesor . Has been for 3 n half weeks . I called them and they said unfortunately given the seriousness of the corona virus they have severe bk log . It could take up to 6 month s to get a paper based or call as thousands of claims haven't been looked at yet and more coming in daily . I called up Dwp pip and they told me they get new guidance or await them daily . So told me to be patient . Nothing we can do . We are stuck on a computer screen atm . I call them weekly takes hours to get trew n when I do it's the same answers they dont know any more than we do . Hope this helps a little . Be safe look after ur self n fingers crossed for every 1 xx

[allanah in reply to Wolf221400]

That's gonna cause problems, I really hope it can get sorted quickly for you . Xxx

[Wolf221400 in reply to allanah]

We all are in the same boat . Thousands of poor sick ppl waiting for a notification or tx or call . Something but nothing not a dicky bird . It's like we have all been forgotten . No updates from pm since 16 th march when all f2f canceled . Not just for pip but the whole disability spectrum . All we can do is sit hear n wait unfortunately . Take care n fingers crossed not just for me but for every 1 x

[rab1874]

Glad I got mines renewed before this all started as now would be a nightmare xxx

[Pippy25]

I think they need to keep well away from our doors right now as we've enough to contend with and so have they with new claimants for UC, ESA etc....but knowing them from past experience not for long and no doubt.....the brown envelopes will commeth and our normal posts will resume!

[KMC15 in reply to Pippy25]

I've just received my brown enveloe in post yday. Panicking as no citizen advise to help/wrote. Thinking of going on lat times but lightly update but worried wont use right wording. Will have to get hubby to write it but by bit b4 17th April. As I cant write & no1 else. Panicking/anxiety that I dont need!

[allanah in reply to KMC15]

Good news , just tell them the truth of diffi guilty getting out of bed bathing tilting dressing g preparing food and the emotional impact on you. Look up nras.org.uk for help and their hemline is still open , number is on the website

[Hidden in reply to KMC15]

Your right it is stressful.

Be methodical... All appointment letters. Copies of prescriptions. You could do with letters of support from. Rheumatologist/nurse , Gp , physio, podiatrist etc. Could be difficult in this current climate.

When answering questions. Look at your worst days. Or how you have adapted around your mobility problems. ( I forgot that when I need the toilet at night I’m often stiff and I hang on to the radiator to sit and stand ..it was just something I’ve done without realising) are you having more bad days than good.Can you carry things up or down stairs? Good luck

[KMC15 in reply to Hidden]

Thank you both... yes very difficult to get info from consultants, nurses, gps etc. I will just have to roughly go by last times & amend accordingly. Trouble is I've been on rituximab for 1yr and it's not really taking affect. But R.A. nurse insists I should stick with it. I also got 2 points deducted last time for using my walking sticks !! The report stated I could walk 50mtr WITH sticks so didnt get the 2 points needed for high mobility. When I specifically stated t f2f that at times I struggle to use them due to the pain in my handles. Even wearing the gloves with metal rods in given from my o.health! - unbelievable. You use aids & get penalised.

[allanah in reply to KMC15]

You say how it is on your worst days, so some days you cant walk that distance with or without sticks. It's hard to write and talk about cause in our culture we say " I'm fine" when we are not. Think seriously about the bad days and that's what you are describing, along g with all your rheumy, doctors , physio etc. Drtsils and any letters . Add extra pages if needed. Obviously tell them your hubby wrote it for you as your hands to painful to write etc etc, you csnt shop etc etc

[Hidden in reply to KMC15]

Unbelievable. Report the distance you can walk without the sticks first. And then the distance you can walk with sticks when your hands and wrists are bad not when they are good. How you manage going up and down stairs... I walk sideways using both hands on the bannister and pull myself up on my worst days. Report how often you leave the house. When I have fatigue I can spend days without leaving I can’t drive because I’m dangerous. You really need to break it down... it’s a royal pain in the butt

[Pippy25 in reply to KMC15]

Just cruel and at a time like this. Words fail me. How will you get the information to them if you are isolating/ shielding? I would give NRAS Helpline a ring for advice. I'm so sorry and saddened to hear this so sending some supportive wishes and take care x

[allanah]

🤗🤗🥰

[Pulfs]

😂😂😂

[KMC15]

Rang PIP & everything on hold for 3mths. As if us with R.A. will be out of this in 3mth!!! More stress/unknown.