Off topic: it is one we all know- I am sure! - NRAS

NRAS

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Off topic

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it is one we all know- I am sure!

7 Replies
charisma profile image
charisma

Hi Deeb,

I often feel it’s the other way round... we are chronically ill with incurable (yet) disease, not interesting at all, therefore inadequate research funding in spite of RA being far more prevalent, comparatively speaking, than other more ‘popular’ or well known diseases and chronic conditions.

I had a chart somewhere that clearly shows the numbers affected by these better supported conditions compared to RA; cannot post it in a response here anyway!

Hope you soon find your medication giving benefits.

in reply tocharisma

charisma yes it is under funded and researched which is a shame but one thing I have learnt from it, is when I talk to family friends or co workers is how little they know or heard of RA. However explaining the issues that can arise, helps them understand it is more than a few creaky joints.

It is a frustrating illness for those that cannot be medicated to remission or who work out 'a way' that is best for them.

I know if someone had said this time last year I am where I am right now I would have scoffed. SO much change in so little time.

But going to keep pushing forward for a positive light at the end of a tunnel.

Dobcross1 profile image
Dobcross1 in reply to

Deeb, hope you find a new med which works for you soon, as I know you're really going through it right now. Love reading your posts - they are always positive and give me a lift, so thank you💐

in reply toDobcross1

Dobcross1 ahh thank you I am the glass if full type person as hubby always says but I have to be as he is always on empty! I have the odd moment of hating it all but I also know it is wasted energy and need to get back on the damn horse!

As Hidden reminded me now off MTX I can have a G&T this weekend!

in reply to

Hope you have more than just one 🍸🥂not worth opening a bottle otherwise 😁 you deserve it .. cheers 🥂

Dobcross1 profile image
Dobcross1 in reply tocharisma

Agree totally Charisma. It feels like no-one is doing anything to raise the profile of RA/RD whilst other diseases have moved forward greatly in terms of curability due to extensive research. There is rarely anything in the press or on tv about RA/RD.

I’m So medically interesting I’ll be frozen future medical interest 😂😂🙄

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