hello its been over a year since ive logged on here how are you all?
where is everyone from? : hello its been over a year... - NRAS
where is everyone from?
Written by
Annie122
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65 Replies
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Good to have you back! Where is everyone from? Edinburgh 😀
edinburgh is beautiful x
It is a stunning city. Where are you?
it is i agree im from ireland xx
My parents are from mayo. I’ll be over there again at the beginning of August, I love Ireland.
that is cool how long have u had ra? xx
Five years. I was diagnosed with ankylosing spondylitis and then a year later, with RA too. It’s very aggressive and they’ve never really been able to get it under control.
I’ve had both hips replaced, bothering knees, surgery in both feet, both wrists and now I need both ankles replaced, the first of which is being done in February. What about you? How’s your journey been?
ive had ra for 17 years now i took it when i was 16 im now 34 ive had my right hip replaced like you my ra is very active ive had hard times with it its a nasty illness what treatment are you on? x
God, that’s a long time to have lived with it and particularly , through your teenage years- that’s got to have been difficult in so many levels!
I’m on my fourth biologic and I take methotrexate, leflunomide and arcoxia, alongside a cocktail of pain killers.
yeah it was really tough but i got there still get bad days with it and i always feel the pain no matter what im on biologics too on benepali what bilologic are you on?
Right now, embrel
• in reply toAnnie122
I live in Birmingham but all my family are Irish
I hail from Melbourne Australia. Born in inner London where some of my family still live. Lung problems started whilst England. Now loads of complications include IBD, RA and organising pneumonia. Steroids are best and worst friends. Can’t live without them.
However, I am now an advocate for better lung knowledge and climate change and health. We’re are in dire straits here in Eastern Australia with overwhelming bush fires and putrid air quality. The air is as bad as it was when I was a kid in London.
We must all hold hands to make a difference.
Dee
I’m in beautiful Norwich and I live by the cathedral and river. I’m very lucky 🍀
Norwich my home town growing up. You are certainly luck to live there. 🍀
I live in Hadleigh Suffolk. I’ve had RA for just over 2 years now and I’m pretty good at the moment. I was diagnosed soon after my first symptoms appeared in my hands and wrist s and prescribed hydroxychlorquine and Methotrexate. I wish I didn’t have RA but know that in many ways I am lucky to have the meds to control the disease. I continue to run and keep active and now that I’m retired have time for myself and my family.
Perhaps some day there will be a cure but I know that’s a long way off. Happy Sunday everyone 😀
I am from Durham, I’ve had RA for 3 years now and take methotrexate and hydroxychloroquine (sorry bout spelling), have good days n bad but more or less under control with pain killers, keep waking up with really bad lower back pain recently 🙄 these things are sent to try us 🙈🤷♀️ Xx
Breaston near Derby
I’m from Ayrshire , the land of Rabbie Burns, as it’s Burns Day, we will be eating haggis, neeps and tattles, (well hubby will, I hate it) welcome back to the group.
I’m from York.....any other Yorkshire folk out there?
And hi to everyone wherever you are. I wish you the best day possible! Lesley x
Isle of Harris but originally dumfriesshire
Hi I am originally from Whitehaven in Cumbria but have lived in Kirkintilloch in Scotland since 1980. I was diagnosed in 2016 but rheumatologist thought I had had RA for some time. Goodxwishes to all.
I'm near Reading Berkshire . Ra for 25yrs
Hello Annie - hope you're doing well.
I'm from Petersfield in Hampshire. It's a market town just north of the South Downs, on the A3 between Guildford and Portsmouth.
Hello Annie
hope you're well today I live 7 miles from Nottingham city near the Derbyshire border. Gorgeous countryside. Wish I could walk in the hills and dales. Have had sero positive ra 34 years and its very frustrating at times.
Hi my name is Claudette and have only be on this amazing site for a week. Recently given the news of RA so pills started yesterday injections to follow. I am from Montreal Canada, my husband is from Glasgow Scotland and brother in law Manchester. A friend who has RA put me on to this site and it is really great. Have a good day all and with as little pain as we can handle .
Notts/Derbys and have had RD 32 years. Alsohave Sjogren's Syndrome, Vasculitis, Osteoarthritis and Osteoporosis and just for good measure, I'm a cancer survivor.
We won't talk about my lungs. 
Hi I l ive in Castleford West Yorkshire. I have had RA for 10 years now then in 2014 I had breast cancer and 2016 esophageal cancer but I'm ok now apart from RA of course. I'm struggling at the moment with fatigue which is hard because i be always been very fit and active but I do try to keep moving if I can. I hope you are keeping as well as can be x
I'm nr King's Lynn Norfolk but originally from NW london 😊
• in reply toPlumcrumble
Oh me too x
Plumcrumble• in reply to
👍 I'm in Clenchwarton 😊
• in reply toPlumcrumble
Lutton Marsh for me
Plumcrumble• in reply to
Maybe we could meet up when the weather gets better 👍
• in reply toPlumcrumble
yes that would be lovely lets hope by March we get some spring weather rather than this grey stuff!
Plumcrumble• in reply to
Yes, definitely 👍
• in reply toPlumcrumble
I will put something in the diary to remind me to ask you- brain fog I will forget..................
Plumcrumble• in reply to
I will do the same 😁
A small village in Aberdeenshire but brought up in fife. Diagnosed last year and have been struggling to get it under control, so many other symptoms appear , alongside RA meds I’m at moment having b12 injections ..
My biggest problem is I’ve been reacting to medications so it’s one step forward then then three back.
• in reply toMaz63
I’m having problems with the meds as well ... they just don’t like me 🥺🙄
I'm in Oxford, had seropositive RA for just over a year now.
Fun to read where everyone is from. I'm in the very northwest corner of Washington state in the US. My grandmother was a McLeod from the Isle of Skye. I was diagnosed with sero negative RA 2 years ago. I'm on hydroxychoroquine and prednisone as I had a life threatening infection a year ago, bacterial meningitis following back surgery. I found this site after I found meningitis now. I have more problems with my spine, right now my right hip, thumbs and great toes.
I enjoy reading your posts, you all whine less than the Facebook group in the US!
Blessings to you all.
From S of England but married an Ulsterman so have moved north.
Hello Annie, I'm from cheshire. x
Hi I'm from Metfield Suffolk. Had RA for 3yrs sero-positive
Hi I’m from York 
x
I’m from north Gloucestershire, very close to the borders with Worcestershire and Herefordshire. I was diagnosed last June with sero positive RA. Now on 20mgs MTX and recently added 200mg hydroxychloroquine but still having a lot of problems with hands and wrists. Keeping patient up until now but think I’ll contact the ‘advice line’ today to see if they can step up the drugs.
I'm from Gwynedd, Wales, near Porthmadog. Had RA five years.
I live in Rawtenstall in East Lancashire - originally from Accrington.
Hi Annie122,
I’m not on here that often, I try to check-in once a week. I live in the North East of Scotland on the Moray coast.
Hi Annie-I live in Houston, Texas but am from the Chicago area. A fish out of water!
I've had RA for 5 years now, take methotrexate and recently add hydroxychloroquin. I've had wrist surgery, 2 hip replacements and soon a rebuilt foot.
Hi Gio1997,
That’s a lot of surgery for only having had RA for 5 years, a lot to cope with. I e had RA & Lupus for 40 years and to be honest I’ve lost count of my surgeries! I inject methotrexate for the RA and hydroxychloroquine for the Lupus. X
Here with you in the lone star state. 6 miles west of Kerrville- between Ingram and Hunt on the Guadalupe. ( where the summer camps are.)
Hertfordshire and doing okay. Welcome back.
Hello Whaleroad,
Can you tell me where and when you were In London? I was born and raised in inner London in the early 1950s and was in the epicentre of the Big Smog. This I believe has caused a lot of my health problems including PF and IBD. What are your health issues? There are very few people around from this period.
Cheers
Dee
My niece is in coupeville!
Texas, USA
Hello everyone
Who was a baby/child in London December 1952 during the Big Smog? If so, apart from Pulmonary Fibrosis what other diseases do you have?
Cheers
Dee
Born in Glasgow, now living in Edinburgh.
Hello from Denmark I’m new here , diagnosed with Psoriasis-arthritis for the last 20 years - and Sjögrens & Hypothyroid the last 2 years.
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