I have seropositive RA and I am taking 10mg Prednisolone daily as none of the RA medications have worked for me. My rheumatologist wants to wean me off the prednisolone as it has caused osteoporosis. Was a bit worried about cutting down as it was helping with the pain. A friend of mine recommended trying Copaiba essential oil which is supposed to be good for reducing inflammation. It's made by a company called doTerra. Was a bit sceptical but thought I would give it a go. I had 1 drop in a little water morning and night and even after just one day I noticed a big difference in the amount of pain. I now feel confident to start cutting down on the steroids. I also have 3 spine fractures and that is being controlled by slow release morphine. My GP wanted to try me on Buprenorphine patches. What a mistake! I have never been so ill in all my life. One of the side effects I experienced was restless legs and I was having to get out of bed every hour or so throughout the night. This resulted in me sleeping throughout the day to try and catch up on sleep. After coming off the Buprenorphine my body clock was out of sync. I found a product on the doTerra site called Serenity Restful complex. I am taking 2 capsules at night and they are really helping. I find that I am not waking up so much during the night and sleeping less during the day. I thought i would share this with you as i am always trying to find things that actually work. The website address below will enable you to enquire further. I hope everyone has a good week xx
mydoterra.com/moiracolle
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lara1953
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I am glad you have found something is working for you darling.. I use melatonin at night which helps along with amytryptaline I sleep fairly well. I looked into the other and to be honest I couldn't afford it as I am on esa/pip. xxxx
Put it on your Christmas present list. I have a list for my family which includes all the oils, a diffuser, pain cream and a lotion applicator. Long gone are the days when I wanted clothes, shoes, perfume etc. Now I just want things that are going to make my condition less painful. I hope you are not in too much pain and are able to manage it. xx
Thats good but my mum had spinal fractures due to Oestoporosis and hers were cemented in a short but worth having done operation. Have you considered that? might be worth asking about.
I'm sceptical of an oil that can reduce inflamation but if it works for you then great. But do not give up on conventenial treatment spinal fractures are awful and you have my sympathy. My mum had a reaction to one lot of patches before the op but it was not the morphine but the adesive so perhaps ask for another brand. I was told as humans we are programmed to like morphine which is why its so addictive.
I have an appointment with a spinal surgeon next Tuesday so will see what they can do. I really want to come off the steroids as they have caused such a lot of problems. I cannot take NSAIDS as they irritate my stomach. I was really sceptical about the oil, but it has really worked for me. I now have a new condition! I was getting a lot of kidney infections and was sent for an ultrasound. This showed a swollen kidney and a cyst on the kidney. I was told I needed a ct scan with contrast dye. On the day of my appointment I rang radiology to ask what was in the contrast dye. They said iodine. Glad I asked because I'm allergic to iodine and my GP hadn't informed them. The appointment had to be cancelled and I have got to wait until my GP comes back from holiday to find out what happens next. Sorry for going on but I have 3 different types of pain and if one of them is being controlled by a natural product then I'm not going to knock it
Have looked at various websites and some say can be ingested as long as it's the purest oil. I have not personally had any side effects. Beginning to wish I hadn't posted my experience of it as I seem to have opened a can of worms. I would hope that people would do their own research before they tried anything anyway
Those reactions are normal here as we do have to be very careful with serious health issues combined with harsh drugs, and always check out complementary treatments for interactions that might be harmful.
But I like the fact that copaiba contains powerful cannabinoids, better than CBD oils.
I fully agree with you. Before I use anything I always do the following:
Research fully the product I am considering using
Check with pharmacist or healthcare provider if it is ok to use
Check for interaction with other drugs I am using
Always buy from a reputable company in its purest form. There are some companies that sell products that are mixed with synthetic materials which could be dangerous
Follow the usage instructions to the letter.
Remember that what works for one person may not work for another. My intention was to share something that worked for me in the hope that maybe it could help other people
I know what you mean about the prednisolone. The health professionals prescribe it and then when you're body can't do without it they tell you to come off it!
This copaiba discussion is really interesting. I am finding various points of view expressed on different sites that describe its use.
But they are contradictory, confusing! Some say not comparable with CBD (guess they mean the higher THC content type, not cannabis sativa ie hemp which is legal in the UK due to its low THCs) whilst others say just no comparison to the potency of cannabis with all its THCs etc intact.
No good studies done yet but it seems to be ok ingested in limited amounts.
This article linked below has excellent citations if you scroll to the end:
I have tried CBD oil and it did not agree with me at all. So glad that I found the Copaiba oil as I get no side effects at all and pain is greatly reduced.
No wonder you like the copaiba. No matter what ‘experts’ are saying without solid research, we know what works for us. You are obviously trying to use it safely.
The CBD oil available legally is nowhere near as powerful as it would be without restrictions on some compounds within it. This is probably why many find it does not work for them. Make it legal but remove the best bits first!
Hoping you continue to feel the benefit of what you found is effective for you. Relief is so welcome! 🙂
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Last day at work
My first Rheumy visit at last,
Prednisolone and urge to pee
This drug, that drug ... my own experiences with RA
It might help some, it might help just somebody, either way "job done"
