Day 5 on Imraldi Biosimilar

[Juliachoo]

Yesterday & today has found a lot of improvement in pain in my hands, wrists,knees & feet, I actually went out without my walking stick last night which is great! Not counting my chickens too much yet though as early days! Two side effects though, bad headaches twice, have always had migraine though so might not be related, but blinking constipation which I have NEVER had before so assuming this is related? All considers though am very happy with results to date ! 💕

[mccaffs2014]

Great news😁

[Hidden]

😁👍

[Kerensa21]

Sounds simple but drink plenty: water not alcohol sadly 😊 x glad it’s working for you

[Juliachoo in reply to Kerensa21]

Thank you Kerensa I’m a complete spring water freak & love water.. I also love a G & T .. or 2 lol xx

[Kerensa21 in reply to Juliachoo]

Ha ha, used to love a g&t 🙂

[Juliachoo in reply to Kerensa21]

So dare you not have one on biologics? Xx

[Kerensa21 in reply to Juliachoo]

It’s nothing to do with them particularly but discovered non alcoholic fatty liver disease on routine scan for uti couple of months ago 🙁 I was on MTX for over a year, who knows? Rheumatology didn’t seem concerned as they monitor liver in blood tests, GP said it wasn’t necessarily related. I’m just being extra cautious, reduced to bud light top on special occasions, lol, but don’t drink much these days. What’s the alternative?; I have days when I get fed up with taking all these drugs but i’m sure everyone does. Good luck with yours, hope improvements continue, I got headaches at start but found drinking more helped, they seem to have reduced with time. Not medical advice just my experience x

[Juliachoo in reply to Kerensa21]

Ooh, so what caused the fatty liver? I did know a friend who was diagnosed with a pregnancy version of fatty liver. Good news about the headaches disappearing in time. I am still on MTX 20ml subcutaneous which I inject Sunday evenings as well as the newly given Imraldi ..take care xx

[Kerensa21 in reply to Juliachoo]

Absolutely no idea; it’s frustrating. I was never big drinker & was just thinking the other day, I probably try to stay healthier since having this than before, try to swim 3x a week, walk every day with help with dog, eat mainly vegetarian: slowly turning into an utter bore 😊. Have slowed right down I guess due to fatigue, stiffness etc; rheumatology did say could be enzymes in drugs but again cld be age & third of population get it a/c to GP. I can’t go back to constant flares so stuck I think. Don’t feel as blase as I sound; I don’t think you ever get used to being slowed down version of your former self but there are others far worse off than me on here x

[Juliachoo in reply to Kerensa21]

Yes, you have to put everything into perspective & a lot is natural age related. I was diagnosed at 62, a bit of a bitch at that age but glad I didn’t get it when I was young. Always someone worse off &

We all have to stay strong & positive .. I love to swim but I’m one of them that likes the pool to myself lol! Seriously considering a hot tub when & if this house move comes off take care xx

[Kerensa21]

Hot tub sounds fab. My little local pool’s quite empty on adult lanes times. Yeah I was dx at 61, 2 years ago, similar to you, not how I planned spending retirement either but can’t imagine how younger people or those with young children cope. Good luck with it Julia and your house move xx

[Juliachoo in reply to Kerensa21]

Me neither, how the hell do you cope as a young parent My consultant did say it can get aggressive very quickly when you’re older & I think that’s the case... turning point for me when I realised I needed to really push for biologics was when 2 days before a holiday to Gran Canaria knees came up with swellings at the back as well as front.. hubby wanted to cancel as couldn’t walk never mind get on a plane, so I rang the airport & got help on the day boarding the plane with the ambi lift...🙈 we then had to re evaluate our housing needs as well & are now moving to a bungalow xx

[Kerensa21]

Oh no but good you still had holiday, it stops you doing so much. I’m thinking of house move later so be interested in how you get on. I didn’t know that about it getting more aggressive if older but then my lot aren’t v good about giving you info 🙄 it figures tho’ as sure I had bouts when younger but just stopped & i’ve heard of people who’ve had one attack then nothing for years. Weird old disease & difficult to explain to others. Tbh the longer I didn’t know about it the better 😉x

[Juliachoo in reply to Kerensa21]

I know when mine was triggered, 12 years ago when I became critically ill & an emergency op for peritonitis & gangrene on a leaking appendix... stuffed my immune system & felt I had lost my zest afterwards... I think a lot of people carry the genetic make up with the propensity to get an autoimmune disease but it has to be set off by trauma, accident or illness.... xx

[Kerensa21 in reply to Juliachoo]

That sounds awful. Do you think you had it 12 years ago then? I could point to so many things Epstein Barr virus when young, awful flu virus & breathlessness that lasted 6 months just before it hit, but who knows; I wish they could point to definite cause. I worry about my kids with genetic component. x

[Juliachoo in reply to Kerensa21]

Hi yes I know what you mean, it is a worry.. Epstein Barr is very serious & does attack the immune system I think? In my family my gran & one of her sisters both had RA... my auntie has ITP & my mum had thyroid deficiency & CLL which are all autoimmune ... don’t think I stood much chance of avoiding it... after the operation I developed pneumonia 3 times in a 9 year period plus acute bronchitis & pleurisy & endless coughs & colds.. you do wonder if you were always heading towards it don’t you? If you’re worried about your children I would give them vitamin D3 & omega 3 capsules

as a lot of people who get it are deficient xxx

[Kerensa21 in reply to Juliachoo]

They’re both early 30s lol but I will say to them lol; I take both. The odds were stacked against you then, sounds dreadful. I am only one in family so far but my poor brother has had joint issues lately too; it’s a mystery to us? x

[Juliachoo in reply to Kerensa21]

Also a Collagen supplement may help too xxx

[rab1874]

Long may it continue 👍

[Juliachoo in reply to rab1874]

Thank you xx

[Hessie5]

Great news! Wishing you continued wellness - all the best. Hessie 😌x

[Juliachoo in reply to Hessie5]

Thank you xx