I'm so depressed from all the pain I can hardly walk cos of both hips now and knees pain. As a consequence my lower back is pulling badly. I can't sleep cos of the pain on each side. My shoulder and arm are in agony constantly. I can't exercise. I can't live my life!!! I know you all are in the same situation or worse, so apologies for the rant in advance but I also know you are the only ones who do actually understand what I'm going through.
My fingers on both hands have also started hurting really badly. It got even worse with the air con at the office yesterday. I guess I'm just angry that despite all my symptoms I can't get a treatment yet, not until my inflammation markers are high and positive. I guess the pain does not relate to the amount of inflammation.
So depressing. I just want a RELIEF. I can't go on like this.
Hey Regina79 - I share your pain you’re not alone. The pain for me intense, brings tears as I think is this how things are going to be. My frustration is I am on the biologic but still feel the same. Difficulty walking - pain radiates all round - need that break, that rainbow of change ....Ibuprofen helps a little on work days. Going to see a private rheumatologist for a second opinion today.. Sending you hope and blessings that things shall improve soon. This is a mountain for sure.
Do go back to your consultants and push for help!
Hi Hessie5,
thanks for your words of support. It does help me feel less alone.
Poor you
I guess not all treatments help with the pain, but perhaps they will help with the progression of the disease. I really hope so.
I can't even take Ibuprofen, I get very severe side-effects from almost everything. I think that it will be hard for me to get on with any of the RA treatments given my issues with side-effects. xx
Can you take Tylenol? It helps me get a good five hours sleep.
I'll look it up, thank you! x
I can’t take ibuprofen but acetaminophen (Tylenol) is ok. I react badly to meds of any kind. I had to come off of methotrexate as I got very ill while taking it. Going to rheumy today to see what comes next. My original tests came back vague. She put me on prednisone and in three days I was pain free. She used that as an indicator it was RA and put me on methotrexate. Year and a half later it wasn’t working and I was ill. I just told my primary care doc last week that my arms hurt so bad. And she said maybe it’s PMR. so when I see my rheumy later I’ll ask about that. The R stands for rheumatica but if I leave here to find what the PM stands for I’ll lose this post. I’ve never mentioned my arms to my rheumy because of all the pain I have in my legs and knees taking the spotlight. Ok, I’ve remembered, the PM is for polymyalgia. Wishing you help with your pain.
Same. Can't take high dose of Ibuprofen... plus I get kidney pains.
Likewise...... we are very similar. I'm just having such a hard time with the Pill too as the one I've been taking for the past year for Endometriosis has been discontinued.
I'm having all sort of severe allergy reactions and side-effects. Even with some vitamins or herbs!
craziness.
That is amazing about Prednisone! Fair enough, maybe I'll ask my Rheumatologist to prescribe me this too!
Oh no...
so sorry to hear. What did not work exactly? yeah, I heard of that too.........
I hope you find out the right disease and diagnosis. It's so important to have straight answers.
I know that my blood tests for RA specifically were positive and elevated. These were also repeated twice to make sure. So I guess there is no doubt about it but then nothing is 100% sure, plus you can have overlapping diseases I guess. Specially within the Autoimmune spectrum! x
Prednisone has limitations and special ways to take and wean off of. Not a drug to take all the time. I use only with flares.
I was on MTX for a long while without great results but some. Then I got deathly ill and couldn’t go to work. As soon as I was off MTX I improved greatly. Will see what she says later today.
Fair enough. Yeah, I wouldnt take it every day anyway. x