Well I dont know what it's doing but....

[Hels1989]

Well I had my 4th benepali injection last night and I dont know what it is doing but last night I slept through from 11pm to 7am for the first time in 2 years since just before I got diagnosed. Generally feel like it's working too but I worry it's still the effects of the steroid that's still in my system. Although a steroid has never worked this well. Cant believe I slept through!! X

[VeronicaF]

I am so pleased for you Hels1989

are you on the same one as me? did you have a lot more pain at first? any blood when brushing teeth? also hows your hair coping on it? what gs are you on, I am on 50gs

[Hels1989 in reply to VeronicaF]

I was in so so much pain. Now some days I feel like I'm cured and other days just a bit of pain but nothing major! Yep benepali pen 50g. My hair has been thinning since mtx to be honest but I had very thick hair so so far it's not a bad thing......unless I go bald of course 😛 xx

[Mmrr]

enjoy it !

[Kerensa21]

First thing I noticed about it too, same as you. Great news, hope you carry on improving Hels xx

[Hels1989 in reply to Kerensa21]

Oh I am glad as now I know it is the benepali. I think it may be working for me but know they can stop working so I'm just glad of each good day I get xx

[Kerensa21 in reply to Hels1989]

Same here Hels, came off it for 2 weeks due to antibiotics & worries me too, take each day as it comes I guess but it was such a relief to be able to sleep normally after over a year (still not sure if that was drugs or disease not controlled enough?); really takes it toll on you. Hope it continues x

[rab1874]

Great news keep up the good work 👍

[HappykindaGal]

Great news! I’ve been taking it since November and like you, two years of steroids and some misery. It works for me, I have my life back and came off the steroids finally in November. My Rheumy nurse also takes it. She was unable to walk and in a wheelchair and now she’s back doing the hill walking she loves.

[Hels1989 in reply to HappykindaGal]

More positive stories. Just what we like to hear 😁 so glad it's working well for you too hun xxx

[MDEC66]

So pleased for you. Keep us updated as to how things go - it's good to hear people's experiences.