Well I had my 4th benepali injection last night and I dont know what it is doing but last night I slept through from 11pm to 7am for the first time in 2 years since just before I got diagnosed. Generally feel like it's working too but I worry it's still the effects of the steroid that's still in my system. Although a steroid has never worked this well. Cant believe I slept through!! X
Well I dont know what it's doing but....: Well I had my... - NRAS
Well I dont know what it's doing but....
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I am so pleased for you Hels1989
are you on the same one as me? did you have a lot more pain at first? any blood when brushing teeth? also hows your hair coping on it? what gs are you on, I am on 50gs
I was in so so much pain. Now some days I feel like I'm cured and other days just a bit of pain but nothing major! Yep benepali pen 50g. My hair has been thinning since mtx to be honest but I had very thick hair so so far it's not a bad thing......unless I go bald of course 😛 xx
enjoy it !
First thing I noticed about it too, same as you. Great news, hope you carry on improving Hels xx
Oh I am glad as now I know it is the benepali. I think it may be working for me but know they can stop working so I'm just glad of each good day I get xx
Same here Hels, came off it for 2 weeks due to antibiotics & worries me too, take each day as it comes I guess but it was such a relief to be able to sleep normally after over a year (still not sure if that was drugs or disease not controlled enough?); really takes it toll on you. Hope it continues x
Great news keep up the good work 👍
Great news! I’ve been taking it since November and like you, two years of steroids and some misery. It works for me, I have my life back and came off the steroids finally in November. My Rheumy nurse also takes it. She was unable to walk and in a wheelchair and now she’s back doing the hill walking she loves.
So pleased for you. Keep us updated as to how things go - it's good to hear people's experiences.